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THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$231K
Program Spending
100%
of total expenses go to program services
Total Contributions
$140.7K
Total Expenses
▼$44.2K
Total Assets
$1.6M
Total Liabilities
▼$0
Net Assets
$1.6M
Officer Compensation
→N/A
Other Salaries
N/A
Investment Income
$26.1K
Fundraising
▼$73.4K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $231K | $140.7K | $44.2K | $1.6M | $1.6M |
| 2023 | $292.9K | $234.4K | $84.7K | $1.4M | $1.4M |
| 2022 | $553K | $534.5K | $214.1K | $1.1M | $1.1M |
| 2021 | $610.4K | $457.4K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Wendy-Becker Feldman | President | 2 | $0 | $0 | $0 | $0 |
| Lisa Hodes | Vice Preside | 2 | $0 | $0 | $0 | $0 |
| David Feldman | Sectry/treas | 2 | $0 | $0 | $0 | $0 |
Wendy-Becker Feldman
President
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Lisa Hodes
Vice Preside
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
David Feldman
Sectry/treas
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Fran Reed | Director | 2 | $0 | $0 | $0 | $0 |
| Harriet Bonelli | Director | 2 | $0 | $0 | $0 | $0 |
| Meri Gussin | Director | 2 | $0 | $0 | $0 | $0 |
| Michael Julius | Director | 2 | $0 | $0 | $0 | $0 |
| Sanford Hodes | Director | 2 | $0 | $0 | $0 | $0 |
| Teri Reed | Director | 2 |
Fran Reed
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Harriet Bonelli
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Meri Gussin
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $291.4K |
| $833.5K |
| $828.1K |
| 2020 | $235.9K | $234.2K | $58.8K | $522.4K | $522.4K |
| 2019 | $412.8K | $367K | $839.9K | $312.6K | $312.6K |
| 2018 | $387.1K | $336.6K | $853.8K | $725.7K | $725.7K |
| 2017 | $235K | $189.2K | $446.6K | $1.2M | $1.2M |
| 2016 | $370.1K | $163.6K | $165.1K | $1.4M | $1.4M |
| 2015 | $513.6K | $119.1K | $116.6K | $1.2M | $1.2M |
| 2014 | $594.5K | $287.3K | $274.7K | $800.7K | $780.7K |
| 2013 | $500.8K | $228.9K | $192.4K | $460.1K | $460.1K |
| 2012 | $406.3K | $318.7K | $319K | $245.4K | $146.4K |
| 2011 | $339K | $181.9K | $545.9K | $174.5K | $57K |
PDF not yet published by IRSView Filing → |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data | PDF not yet published by IRS |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| $0 |
| $0 |
| $0 |
| $0 |
| Valarie Rosen | Director | 2 | $0 | $0 | $0 | $0 |
Michael Julius
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Sanford Hodes
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Teri Reed
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Valarie Rosen
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0