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TO ENHANCE THE QUALITY OF PATIENTS' LIVES WHILE TAKING THE NECESSARY STEPS TOWARD FINDING A CURE FOR THIS FATAL BLOOD DISEASE.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2023
Total Revenue
▼$2.8M
Program Spending
79%
of total expenses go to program services
Total Contributions
$2.6M
Total Expenses
▼$2.2M
Total Assets
$6.4M
Total Liabilities
▼$720K
Net Assets
$5.7M
Officer Compensation
→N/A
Other Salaries
$707.2K
Investment Income
$239.5K
Fundraising
▼N/A
Tax Year 2023 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $200K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
NEW YORK BLOOD CENTER | NEW YORK, NY | $50K | Cash | — |
UNIVERSITY OF ILLINOIS | CHAMPAIGN, IL | $50K | Cash | — |
BOSTON MEDICAL CENTER CORP | BOSTON, MA | $50K | Cash | — |
REGENTS OF THE UNIVERSITY OF CA | LOS ANGELES, CA | $50K | Cash | — |
| Total | $200K | |||
NEW YORK BLOOD CENTER
NEW YORK, NY
$50K
UNIVERSITY OF ILLINOIS
CHAMPAIGN, IL
$50K
BOSTON MEDICAL CENTER CORP
BOSTON, MA
$50K
REGENTS OF THE UNIVERSITY OF CA
LOS ANGELES, CA
$50K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2023 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023IRS e-File | $2.8M | $2.6M | $2.2M | $6.4M | $5.7M |
| 2022IRS e-File | $2.3M | $2.3M | $2.2M | $5.6M | $5.1M |
| 2021 | $1.6M | $694.1K | $1.7M | $4.7M | $3.8M |
| 2020 | $1.1M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2023)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2023)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Janice Cenzaprano | Treasurer | — | $0 | $0 | $0 | $0 |
| Ralph Colasanti | President | — | $0 | $0 | $0 | $0 |
| Maria Hadjidemetriou | Secretary | — | $0 | $0 | $0 | $0 |
| Dr Janet Kwiatkowski | Medical Adv | — | $0 | $0 | $0 | $0 |
| Joseph Vigliotti | Vice Preside | — | $0 | $0 | $0 | $0 |
Janice Cenzaprano
Treasurer
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Ralph Colasanti
President
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Maria Hadjidemetriou
Secretary
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Dr Janet Kwiatkowski
Medical Adv
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Joseph Vigliotti
Vice Preside
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Craig Butler | Executive Di | 40 | $165.1K | $0 | $0 | $165.1K |
Craig Butler
Executive Di
$165.1K
Hrs/Wk
40
Compensation
$165.1K
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Amnish Goel | Director | — | $0 | $0 | $0 | $0 |
| Amy Celento | Director | — | $0 | $0 | $0 | $0 |
| Anthony Ferrino | Director | — | $0 | $0 | $0 | $0 |
| Anthony Viola | Director | — | $0 | $0 | $0 | $0 |
| Antoni Foe | Director | — | $0 | $0 | $0 | $0 |
| Ben Li | Director | — |
Amnish Goel
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Amy Celento
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Anthony Ferrino
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
| $786.7K |
| $2.2M |
| $4.7M |
| $3.9M |
| 2019 | $2.2M | $1M | $2.1M | $5.2M | $5M |
| 2018 | $3.5M | $2M | $1.9M | $5M | $4.9M |
| 2017 | $2.5M | $1.3M | $1.7M | $3.7M | $3.4M |
| 2016 | $2.1M | $1.1M | $1.7M | $2.6M | $2.5M |
| 2015 | $1.8M | $626.7K | $1.8M | $2.3M | $2.1M |
| 2014 | $1.8M | $691.2K | $1.8M | $2.2M | $2.1M |
| 2013 | $2M | $1.1M | $1.7M | $2.2M | $2M |
| 2012 | $1.6M | $689.8K | $1.5M | $1.9M | $1.7M |
| 2011 | $1.4M | $417.5K | $1.6M | $1.7M | $1.6M |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| $0 |
| $0 |
| $0 |
| $0 |
| Cammie Brandofino | Director | — | $0 | $0 | $0 | $0 |
| Carmine Abruzzo | Director | — | $0 | $0 | $0 | $0 |
| Christine Horton | Director | — | $0 | $0 | $0 | $0 |
| Cindy Morrison | Director | — | $0 | $0 | $0 | $0 |
| Dean Hernan | Director | — | $0 | $0 | $0 | $0 |
| Dr Alan Cohen | Director | — | $0 | $0 | $0 | $0 |
| Frank Fusaro | Director | — | $0 | $0 | $0 | $0 |
| Frank Somma | Director | — | $0 | $0 | $0 | $0 |
| Frank Tidona | Director | — | $0 | $0 | $0 | $0 |
| James Ventola | Director | — | $0 | $0 | $0 | $0 |
| Jennie Rose Chieco | Director | — | $0 | $0 | $0 | $0 |
| Joseph Di Trapani | Director | — | $0 | $0 | $0 | $0 |
| Joseph Sciame | Director | — | $0 | $0 | $0 | $0 |
| Joseph Zuraw | Director | — | $0 | $0 | $0 | $0 |
| Josephine Flood | Director | — | $0 | $0 | $0 | $0 |
| Julia Cenzaprano | Director | — | $0 | $0 | $0 | $0 |
| Laurie Pizzo | Director | — | $0 | $0 | $0 | $0 |
| Mary Ann Cervoni-Iaia | Director | — | $0 | $0 | $0 | $0 |
| Michael Pouchie | Director | — | $0 | $0 | $0 | $0 |
| Michael Presto | Director | — | $0 | $0 | $0 | $0 |
| Michelle Chieco-Lenz | Director | — | $0 | $0 | $0 | $0 |
| Paul Polo | Director | — | $0 | $0 | $0 | $0 |
| Peter Chieco | Director | — | $0 | $0 | $0 | $0 |
| Phil Rutigliano | Director | — | $0 | $0 | $0 | $0 |
| Pranav Saha | Director | — | $0 | $0 | $0 | $0 |
| Radhika Sawh | Director | — | $0 | $0 | $0 | $0 |
| Robert Ficarra | Director | — | $0 | $0 | $0 | $0 |
| Sarah Baqueri Connolly | Director | — | $0 | $0 | $0 | $0 |
| Shirley Cammilleri | Director | — | $0 | $0 | $0 | $0 |
| Teresa Tomaino | Director | — | $0 | $0 | $0 | $0 |
| Terri Difillipo | Director | — | $0 | $0 | $0 | $0 |
| Thomas Cheng | Director | — | $0 | $0 | $0 | $0 |
| Thomas Rotolo | Director | — | $0 | $0 | $0 | $0 |
| Tom Watral | Director | — | $0 | $0 | $0 | $0 |
| Tracy Antonelli | Director | — | $0 | $0 | $0 | $0 |
| William Pisano | Director | — | $0 | $0 | $0 | $0 |
Anthony Viola
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Antoni Foe
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Ben Li
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Cammie Brandofino
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Carmine Abruzzo
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Christine Horton
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Cindy Morrison
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Dean Hernan
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Dr Alan Cohen
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Frank Fusaro
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Frank Somma
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Frank Tidona
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
James Ventola
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Jennie Rose Chieco
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Joseph Di Trapani
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Joseph Sciame
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Joseph Zuraw
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Josephine Flood
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Julia Cenzaprano
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Laurie Pizzo
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Mary Ann Cervoni-Iaia
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Michael Pouchie
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Michael Presto
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Michelle Chieco-Lenz
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Paul Polo
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Peter Chieco
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Phil Rutigliano
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Pranav Saha
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Radhika Sawh
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Robert Ficarra
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Sarah Baqueri Connolly
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Shirley Cammilleri
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Teresa Tomaino
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Terri Difillipo
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Thomas Cheng
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Thomas Rotolo
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Tom Watral
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Tracy Antonelli
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
William Pisano
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0