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THE ORGANIZATION'S MISSION IS TO ASSIST SPECIAL NEEDS INDIVIDUALS AND THEIR FAMILIES WHO ARE SUFFERING FROM GENETIC DISORDERS SUCH AS RUBENSTEINTAYBI SYNDROME; AND TO CONTRIBUTE TO ORGANIZATIONS WITH SIMILAR OBJECTIVES.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$3.8M
Program Spending
73%
of total expenses go to program services
Total Contributions
$337.4K
Total Expenses
▼$3.4M
Total Assets
$4.9M
Total Liabilities
▼$2.1M
Net Assets
$2.8M
Officer Compensation
→$166.6K
Other Salaries
$2M
Investment Income
$47.3K
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $3.8M | $337.4K | $3.4M | $4.9M | $2.8M |
| 2023IRS e-File | $3.4M | $229.7K | $2.8M | $4.5M | $2.3M |
| 2022 | $2.5M | $272.8K | $1.9M | $4M | $1.7M |
| 2021 | $1.3M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Karen Parenti | Executive Di | 40 | $166.6K | $0 | $0 | $166.6K |
| Craig Binetti | Treasurer | 5 | $0 | $0 | $0 | $0 |
| Carol Garavente | Vice Preside | 5 | $0 | $0 | $0 | $0 |
| Chris Garavente | President | 40 | $0 | $0 | $0 | $0 |
Karen Parenti
Executive Di
$166.6K
Hrs/Wk
40
Compensation
$166.6K
Related Orgs
$0
Other
$0
Craig Binetti
Treasurer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Carol Garavente
Vice Preside
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Chris Garavente
President
$0
Hrs/Wk
40
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Brian Musso | Board Member | 2 | $0 | $0 | $0 | $0 |
| George Olvany | Board Member | 2 | $0 | $0 | $0 | $0 |
| Jacqueline Garavente | Board Member | 2 | $0 | $0 | $0 | $0 |
| Jane Ikeda | Board Member | 2 | $0 | $0 | $0 | $0 |
| Jeff Goldstein | Board Member | 2 | $0 | $0 | $0 | $0 |
| Ken Sklenar | Board Member |
Brian Musso
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
George Olvany
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jacqueline Garavente
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $405.4K |
| $996.7K |
| $2.6M |
| $1.1M |
| 2020 | $797.7K | $159.2K | $605.5K | $1.6M | $819K |
| 2019 | $675.1K | $46.6K | $544.7K | $1M | $626.8K |
| 2018 | $711.8K | $132.1K | $415.7K | $508.5K | $496.4K |
| 2017 | $219.1K | $101.3K | $180.4K | $262.1K | $252.7K |
| 2016 | $142.8K | — | $108.2K | $221.8K | — |
| 2015 | $200.2K | — | $159.8K | $185.1K | — |
| 2014 | $157K | — | $117.1K | $143.6K | — |
| 2013 | $92.7K | — | $103.1K | $104.5K | — |
| 2012 | $135.9K | $77K | $139.5K | $113.2K | $109.5K |
| 2011 | $183.7K | $74.9K | $155.7K | $116.9K | $113.1K |
| 2010 | $100.1K | — | $289.3K | $88.3K | — |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990-EZ | Data |
| 2015 | 990-EZ | Data |
| 2014 | 990-EZ | Data |
| 2013 | 990-EZ | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990-EZ | Data |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 2 |
| $0 |
| $0 |
| $0 |
| $0 |
| Marc Greenberger | Board Member | 2 | $0 | $0 | $0 | $0 |
| Martin Brennan | Board Member | 2 | $0 | $0 | $0 | $0 |
| Toni Pergolin | Board Member | 2 | $0 | $0 | $0 | $0 |
Jane Ikeda
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jeff Goldstein
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Ken Sklenar
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Marc Greenberger
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Martin Brennan
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Toni Pergolin
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0