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CHRONIC ILLNESS ASSISTANCE DEDICATED TO GENERATING FUNDS FOR CHARITABLE ORGS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF CHRONIC DISEASES AND THAT DO RESEARCH TO FIND CURES FOR CHRONIC DISEASES; ASSIST INDIVIDUALS AND THEIR FAMILIES WITH MANAGING THEIR MEDICAL CARE. PROVIDE MEDICATION TO CHRONICALLY ILL INDIVIDUALS AT LITTLE OR NO COST.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$7M
Program Spending
73%
of total expenses go to program services
Total Contributions
$10K
Total Expenses
▼$3.7M
Total Assets
$39.5M
Total Liabilities
▼$21.7M
Net Assets
$17.8M
Officer Compensation
→$576.3K
Other Salaries
$589.8K
Investment Income
$19.9K
Fundraising
▼N/A
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $495.5K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
HEMOPHILIA ALLIANCE FOUNDATION80-0902096 | LANSDALE, LA | $140K | Cash | INNOVATION GRANT |
| ROCHESTER, NY | $100K | Cash | QUARTERLY FUNDING | |
INDIANA HEMOPHILIA AND THROMBOSIS CENTER35-2047838 | INDIANAPOLIS, IN | $100K | Cash | PHYSICIANS ACADEMY SYMPOSIUM |
THE HEMOPHILIA ALLIANCE20-2529619 | CLEARWATER, FL | $77K | Cash | GENERAL GRANT |
THE COALITION FOR HEMOPHILIA B13-3686549 | NEW YORK, NY | $31.5K | Cash | ETERNAL SPIRIT GALA SPONSOR |
FWGBD27-2456813 | MONTCLAIR, NJ | $25K | Cash | 2024 GIVING TUESDAY |
SAVE ONE LIFE INC | GROVELAND, MA | $10K | Cash | SPONSOR FOR WHEELS OF THE WORLD EVENT |
HFA HELPING HANDS72-1282316 | WASHINGTON DC, DC | $6,595 | Cash | HFA APRIL 2023 SYMPOSIUM |
NBDF SOIREE13-5641857 | NEW YORK, NY | $5,417 | Cash | NBDF SOIREE CHICAGO (NATIONAL BLEEDING DISORDER FOUNDATION) |
| Total | $495.5K | |||
LANSDALE, LA
$140K
ROCHESTER, NY
$100K
INDIANAPOLIS, IN
$100K
CLEARWATER, FL
$77K
NEW YORK, NY
$31.5K
MONTCLAIR, NJ
$25K
SAVE ONE LIFE INC
GROVELAND, MA
$10K
WASHINGTON DC, DC
$6,595
NEW YORK, NY
$5,417
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $7M | $10K | $3.7M | $39.5M | $17.8M |
| 2023IRS e-File | $6.7M | $0 | $3.5M | $43.9M | $13.3M |
| 2022 | $6.4M | $0 | $3.2M | $47.4M | $11.2M |
| 2021 | $5M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Vincent Fusaro | President | 40 | $344.7K | $0 | $60.2K | $404.9K |
| Maryann Fusaro | Vice President | 40 | $124.4K | $0 | $47K | $171.4K |
| Jeff Blake | Secretary | 2 | $0 | $0 | $0 | $0 |
| Gladys Lee | Treasurer | 2 | $0 | $0 | $0 | $0 |
| Mark Plencner | Chairman | 2 | $0 | $0 | $0 | $0 |
| Joseph Bailey | Vice Chairman | 2 | $0 | $0 | $0 | $0 |
Vincent Fusaro
President
$404.9K
Hrs/Wk
40
Compensation
$344.7K
Related Orgs
$0
Other
$60.2K
Maryann Fusaro
Vice President
$171.4K
Hrs/Wk
40
Compensation
$124.4K
Related Orgs
$0
Other
$47K
Jeff Blake
Secretary
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Gladys Lee
Treasurer
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Mark Plencner
Chairman
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Joseph Bailey
Vice Chairman
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Michael Fusaro | Director Of Regulatory Com | 40 | $202.1K | $0 | $106.8K | $308.9K |
| Ayoung Shin | Senior Clinical Staff Phar | 40 | $189.9K | $0 | $11.4K | $201.3K |
Michael Fusaro
Director Of Regulatory Com
$308.9K
Hrs/Wk
40
Compensation
$202.1K
Related Orgs
$0
Other
$106.8K
Ayoung Shin
Senior Clinical Staff Phar
$201.3K
Hrs/Wk
40
Compensation
$189.9K
Related Orgs
$0
Other
$11.4K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Alison Bartko | Director | 2 | $0 | $0 | $0 | $0 |
| Carol Madeiros | Director | 2 | $0 | $0 | $0 | $0 |
| Jeff Amond | Director | 2 | $0 | $0 | $0 | $0 |
| Joe Pugliese | Director | 2 | $0 | $0 | $0 | $0 |
| John Myers | Director | 2 | $0 | $0 | $0 | $0 |
| Steven Tran | Director | 2 |
Alison Bartko
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Carol Madeiros
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jeff Amond
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $111.3K |
| $2.2M |
| $32.6M |
| $8.2M |
| 2020 | $3.1M | $0 | $1.7M | $23.3M | $5.4M |
| 2019 | $3.1M | $9,000 | $1.8M | $19.7M | $4M |
| 2018 | $1.9M | $0 | $1.3M | $14.7M | $2.7M |
| 2017 | $2.1M | $22.5K | $1.3M | $10.6M | $2.1M |
| 2016 | $1.2M | $436 | $1M | $7.3M | $1.3M |
| 2015 | $879.2K | $143 | $962.9K | $3.3M | $1.2M |
| 2014 | $1M | $1,263 | $1M | $1.7M | $1.3M |
| 2013 | $1.3M | $111.7K | $1M | $1.7M | $1.3M |
| 2012 | $1.2M | $116.1K | $736.1K | $1.6M | $1.1M |
| 2011 | $709K | $62.4K | $648.3K | $1.3M | $634.4K |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data | PDF not yet published by IRS |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| $0 |
| $0 |
| $0 |
| $0 |
Joe Pugliese
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
John Myers
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Steven Tran
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0