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Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$19.7M
Program Spending
84%
of total expenses go to program services
Total Contributions
$18.9M
Total Expenses
▼$19M
Total Assets
$30.7M
Total Liabilities
▼$3.9M
Net Assets
$26.8M
Officer Compensation
→$1.6M
Other Salaries
$3.9M
Investment Income
$853.6K
Fundraising
▼$224.7K
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$295.2K
Awards Found
8
| Awarding Agency | Description | Amount | Fiscal Year | Period |
|---|---|---|---|---|
| Department of Health and Human Services | CHILDREN'S TUMOR FOUNDATION 2014 NEUROFIBROMATOSIS (NF) CONFERENCE | $63K | FY2013 | Jun 2013 – Jun 2017 |
| Department of Health and Human Services | 2009 NF CONFERENCE | $51.7K | FY2009 | Jun 2009 – May 2010 |
| Department of Health and Human Services | 2010 NF CONFERENCE | $46K | FY2010 | Jun 2010 – May 2011 |
| Department of Health and Human Services | 2008 NF CONFERENCE | $42K | FY2008 | Jun 2008 – May 2009 |
| Department of Health and Human Services | 2011 NEUROFIBROMATOSIS (NF) CONFERENCE | $40K | FY2011 | Mar 2011 – Feb 2012 |
| Department of Health and Human Services | CHILDREN'S TUMOR FOUNDATION 2017 NEUROFIBROMATOSIS (NF) CONFERENCE | $22.5K | FY2017 | Jun 2017 – Jun 2018 |
| Department of Health and Human Services | 2012 NEUROFIBROMATOSIS (NF) CONFERENCE | $20K | FY2012 | Jul 2012 – Jun 2013 |
| Department of Health and Human Services | 2018 JOINT GLOBAL NEUROFIBROMATOSIS CONFERENCE | $10K | FY2018 | Sep 2018 – Sep 2019 |
Department of Health and Human Services
$63K
CHILDREN'S TUMOR FOUNDATION 2014 NEUROFIBROMATOSIS (NF) CONFERENCE
Department of Health and Human Services
$51.7K
2009 NF CONFERENCE
Department of Health and Human Services
$46K
2010 NF CONFERENCE
Department of Health and Human Services
$42K
2008 NF CONFERENCE
Department of Health and Human Services
$40K
2011 NEUROFIBROMATOSIS (NF) CONFERENCE
Department of Health and Human Services
$22.5K
CHILDREN'S TUMOR FOUNDATION 2017 NEUROFIBROMATOSIS (NF) CONFERENCE
Department of Health and Human Services
$20K
2012 NEUROFIBROMATOSIS (NF) CONFERENCE
Department of Health and Human Services
$10K
2018 JOINT GLOBAL NEUROFIBROMATOSIS CONFERENCE
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $19.7M | $18.9M | $19M | $30.7M | $26.8M |
| 2023 | $16.4M | $15.7M | $18.8M | $30.1M | $25.7M |
| 2022 | $17M | $15.5M | $15.8M | $32.1M | $27.6M |
| 2021 | $16.8M | $15.2M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Annette Bakker | President | 37.5 | $404.7K | $0 | $63.6K | $468.4K |
| Brigid Garelik | Chief Medical Officer | 37.5 | $343.3K | $0 | $61.4K | $404.6K |
| Simon Vukelj | Chief Marketing Officer | 37.5 | $246.1K | $0 | $30.8K | $276.9K |
| Monica Sohn | Chief Growth Officer | 37.5 | $258.8K | $0 | $12.6K | $271.3K |
| Sarah Bourne | Sr. Vp, Finance And Operations | 37.5 | $194.2K | $0 | $9,091 | $203.3K |
| Liz Rodbell | Vice Chair | 1 | $0 | $0 | $0 | $0 |
| Rb Harrison | Treasurer | 1 | $0 | $0 | $0 | $0 |
| Gabriel Groisman | Chair | 1 | $0 | $0 | $0 | $0 |
Annette Bakker
President
$468.4K
Hrs/Wk
37.5
Compensation
$404.7K
Related Orgs
$0
Other
$63.6K
Brigid Garelik
Chief Medical Officer
$404.6K
Hrs/Wk
37.5
Compensation
$343.3K
Related Orgs
$0
Other
$61.4K
Simon Vukelj
Chief Marketing Officer
$276.9K
Hrs/Wk
37.5
Compensation
$246.1K
Related Orgs
$0
Other
$30.8K
Monica Sohn
Chief Growth Officer
$271.3K
Hrs/Wk
37.5
Compensation
$258.8K
Related Orgs
$0
Other
$12.6K
Sarah Bourne
Sr. Vp, Finance And Operations
$203.3K
Hrs/Wk
37.5
Compensation
$194.2K
Related Orgs
$0
Other
$9,091
Liz Rodbell
Vice Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Rb Harrison
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Gabriel Groisman
Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Irene Morganstern | Director, Preclinical Initiatives | 37.5 | $184K | $0 | $54.1K | $238.1K |
| Barbara Gallagher | Vice President Of Dev. | 37.5 | $172.1K | $0 | $43.4K | $215.5K |
| Jennifer Ching | Director, Human Resources | 37.5 | $160.1K | $0 | $38.3K | $198.4K |
| Amy Boulas | VP Dev. Ptp And Field Based Events | 37.5 | $151.5K | $0 | $34.9K | $186.5K |
| Michele Przypyszny | Chief Advancement Officer | 37.5 | $166.9K | $0 | $4,026 | $170.9K |
Irene Morganstern
Director, Preclinical Initiatives
$238.1K
Hrs/Wk
37.5
Compensation
$184K
Related Orgs
$0
Other
$54.1K
Barbara Gallagher
Vice President Of Dev.
$215.5K
Hrs/Wk
37.5
Compensation
$172.1K
Related Orgs
$0
Other
$43.4K
Jennifer Ching
Director, Human Resources
$198.4K
Hrs/Wk
37.5
Compensation
$160.1K
Related Orgs
$0
Other
$38.3K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Carol Kalagher | Board Member (outgoing) | 1 | $0 | $0 | $0 | $0 |
| Daniel Altman | Board Member | 1 | $0 | $0 | $0 | $0 |
| Daniel Gilbert | Board Member (outgoing) | 1 | $0 | $0 | $0 | $0 |
| Ed Stern | Board Member (outgoing) | 1 | $0 | $0 | $0 | $0 |
| Emily Parker | Board Member | 1 | $0 | $0 | $0 | $0 |
| Frank Haughton | Board Member |
Carol Kalagher
Board Member (outgoing)
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Daniel Altman
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Daniel Gilbert
Board Member (outgoing)
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $10.4M |
| $29.6M |
| $27.3M |
| 2020 | $12.8M | $11.7M | $10.4M | $23.1M | $20.5M |
| 2019 | $17.9M | $16.1M | $11.3M | $19.2M | $17.7M |
| 2018 | $12.5M | $11.9M | $12.4M | $11.7M | $10.5M |
| 2017 | $11.4M | $10.8M | $12.6M | $12.1M | $10.7M |
| 2016 | $15.6M | $15.5M | $14.8M | $13.8M | $11.5M |
| 2015 | $15.3M | $15.2M | $15.2M | $13.1M | $10.4M |
| 2014 | $15.5M | $15.4M | $14.2M | $13.2M | $10.3M |
| 2013 | $12.5M | $12.2M | $11.9M | $11M | $8.8M |
| 2012 | $9.5M | $9.4M | $8.2M | $9.3M | $7.7M |
| 2011 | $9.5M | $9.3M | $8.1M | $9.1M | $6.2M |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
Amy Boulas
VP Dev. Ptp And Field Based Events
$186.5K
Hrs/Wk
37.5
Compensation
$151.5K
Related Orgs
$0
Other
$34.9K
Michele Przypyszny
Chief Advancement Officer
$170.9K
Hrs/Wk
37.5
Compensation
$166.9K
Related Orgs
$0
Other
$4,026
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| George Thuronyi | Board Member | 1 | $0 | $0 | $0 | $0 |
| Jaishri Blakeley | Board Member | 1 | $0 | $0 | $0 | $0 |
| Kenneth Rudd | Board Member | 1 | $0 | $0 | $0 | $0 |
| Laura Granneman | Board Member | 1 | $0 | $0 | $0 | $0 |
| Linda H Martin | Chair Emeritus | 1 | $0 | $0 | $0 | $0 |
| Lu Le | Board Member | 1 | $0 | $0 | $0 | $0 |
| Mark Oppenheimer | Board Member | 1 | $0 | $0 | $0 | $0 |
| Montse Montaner Picart | Board Member | 1 | $0 | $0 | $0 | $0 |
| Randall Stanicky | Board Member | 1 | $0 | $0 | $0 | $0 |
| Richard Horvitz | Chair Emeritus | 1 | $0 | $0 | $0 | $0 |
| Richard Soll | Board Member | 1 | $0 | $0 | $0 | $0 |
| Robert Brainin | Board Member (outgoing) | 1 | $0 | $0 | $0 | $0 |
| Roger - Ketcha Ngassam | Board Member | 1 | $0 | $0 | $0 | $0 |
| Sally Gottesman | Board Member | 1 | $0 | $0 | $0 | $0 |
| Scott Plotkin | Board Member | 1 | $0 | $0 | $0 | $0 |
| Simone Manso | Board Member | 1 | $0 | $0 | $0 | $0 |
| Steven Mckenzie | Board Member | 1 | $0 | $0 | $0 | $0 |
| Tracy Galloway | Board Member | 1 | $0 | $0 | $0 | $0 |
| Vicki Match Suna | Board Member | 1 | $0 | $0 | $0 | $0 |
| Wade Clapp | Board Member | 1 | $0 | $0 | $0 | $0 |
Ed Stern
Board Member (outgoing)
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Emily Parker
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Frank Haughton
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
George Thuronyi
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jaishri Blakeley
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Kenneth Rudd
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Laura Granneman
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Linda H Martin
Chair Emeritus
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Lu Le
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Mark Oppenheimer
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Montse Montaner Picart
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Randall Stanicky
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Richard Horvitz
Chair Emeritus
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Richard Soll
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Robert Brainin
Board Member (outgoing)
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Roger - Ketcha Ngassam
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sally Gottesman
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Scott Plotkin
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Simone Manso
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Steven Mckenzie
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Tracy Galloway
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Vicki Match Suna
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Wade Clapp
Board Member
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0