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The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2023
Total Revenue
▼$4M
Program Spending
80%
of total expenses go to program services
Total Contributions
$2.4M
Total Expenses
▼$5.3M
Total Assets
$13M
Total Liabilities
▼$1.1M
Net Assets
$11.9M
Officer Compensation
→$211.1K
Other Salaries
$1.6M
Investment Income
$757.9K
Fundraising
▼$1.3M
Tax Year 2023 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $224.2K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
AdventHealth Foundation59-2219301 | Altamonte Springs, FL | $100K | Cash | healthcare services |
DSA of Central Ohio31-1126185 | Columbus, OH | $100K | Cash | adult literacy program |
Fora Education | Rochester, MN | $24.2K | Cash | Transition Guide |
| Total | $224.2K | |||
Altamonte Springs, FL
$100K
Columbus, OH
$100K
Fora Education
Rochester, MN
$24.2K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023IRS e-File | $4M | $2.4M | $5.3M | $13M | $11.9M |
| 2022IRS e-File | $3.4M | $2M | $4.2M | $13.5M | $12.4M |
| 2021 | $3.5M | $2.4M | $2.7M | $15.3M | $14.7M |
| 2020 | $3.1M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2023)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Kandi Pickard | President & CEO | 40 | $205K | $0 | $15.5K | $220.5K |
| Carlo P Frappolli | Chairman | 1.5 | $0 | $0 | $0 | $0 |
| Thomas Warner | Vice President | 1.5 | $0 | $0 | $0 | $0 |
| Janet Eissenstat | Secretary | 1.5 | $0 | $0 | $0 | $0 |
| John Short | Treasurer | 1.5 | $0 | $0 | $0 | $0 |
Kandi Pickard
President & CEO
$220.5K
Hrs/Wk
40
Compensation
$205K
Related Orgs
$0
Other
$15.5K
Carlo P Frappolli
Chairman
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Thomas Warner
Vice President
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Janet Eissenstat
Secretary
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
John Short
Treasurer
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Anthony Gostkowski | Director | 0.7 | $0 | $0 | $0 | $0 |
| C Mitch Taylor | Director | 0.7 | $0 | $0 | $0 | $0 |
| Candace Whiting | Director | 0.7 | $0 | $0 | $0 | $0 |
| Ciara Siegel | Director | 0.7 | $0 | $0 | $0 | $0 |
| Courtney Gaines | Director | 0.7 | $0 | $0 | $0 | $0 |
| Debbie Morris | Director |
Anthony Gostkowski
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
C Mitch Taylor
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Candace Whiting
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
| $2.4M |
| $2.8M |
| $12.4M |
| $11.7M |
| 2019 | $2.8M | $2.1M | $3.4M | $11.9M | $11.4M |
| 2018 | $3.3M | $2.5M | $3.9M | $12.3M | $11.9M |
| 2017 | $10M | $3.1M | $2.1M | $12.3M | $11.9M |
| 2016 | $2.1M | $1.5M | $2.1M | $3.9M | $3.7M |
| 2015 | $2.4M | $2.1M | $2.4M | $4.1M | $3.9M |
| 2014 | $2.4M | $2.1M | $2.4M | $4.2M | $4M |
| 2013 | $2.2M | $2M | $2.4M | $4.2M | $3.9M |
| 2012 | $2.1M | $1.8M | $2.2M | $4.2M | $3.9M |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | — |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 0.7 |
| $0 |
| $0 |
| $0 |
| $0 |
| Elizabeth F Goodwin | Director | 0.7 | $0 | $0 | $0 | $0 |
| Joe Joyce | Director | 0.7 | $0 | $0 | $0 | $0 |
| John Cronin | Director | 0.7 | $0 | $0 | $0 | $0 |
| Kerry Sette | Director | 0.7 | $0 | $0 | $0 | $0 |
| Lauren Wang | Director | 0.7 | $0 | $0 | $0 | $0 |
| Lisa Pelham | Director | 0.7 | $0 | $0 | $0 | $0 |
| Marjorie Shavers | Director | 0.7 | $0 | $0 | $0 | $0 |
| Mark Johnson | Director | 0.7 | $0 | $0 | $0 | $0 |
| Michael Kulma | Director | 0.7 | $0 | $0 | $0 | $0 |
| Misty Holmes | Director | 0.7 | $0 | $0 | $0 | $0 |
| Robert Siegel | Director | 0.7 | $0 | $0 | $0 | $0 |
| Schunda Murphy | Director | 0.7 | $0 | $0 | $0 | $0 |
| Thomas Santos | Director | 0.7 | $0 | $0 | $0 | $0 |
| Victoria Tremonti | Director | 0.7 | $0 | $0 | $0 | $0 |
Ciara Siegel
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Courtney Gaines
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Debbie Morris
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Elizabeth F Goodwin
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Joe Joyce
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
John Cronin
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Kerry Sette
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Lauren Wang
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Lisa Pelham
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Marjorie Shavers
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Mark Johnson
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Michael Kulma
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Misty Holmes
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Robert Siegel
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Schunda Murphy
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Thomas Santos
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0
Victoria Tremonti
Director
$0
Hrs/Wk
0.7
Compensation
$0
Related Orgs
$0
Other
$0