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To provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$338.2K
Program Spending
52%
of total expenses go to program services
Total Contributions
$275.9K
Total Expenses
▼$283.1K
Total Assets
$2M
Total Liabilities
▼$8,019
Net Assets
$2M
Officer Compensation
→$93.7K
Other Salaries
$29.5K
Investment Income
$56.1K
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $338.2K | $275.9K | $283.1K | $2M | $2M |
| 2023 | $458.3K | $322K | $599.3K | $1.8M | $1.8M |
| 2022 | $358.1K | $241K | $519.5K | $1.9M | $1.9M |
| 2021 | $1M | $988.9K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Jennifer Whitman | Executive Director | 40 | $90K | $0 | $0 | $90K |
| Destiny Bachman | Treasurer | 10 | $0 | $0 | $0 | $0 |
| Jon Fisher | Secretary | 10 | $0 | $0 | $0 | $0 |
| Steven Maldonado | Vice President | 2 | $0 | $0 | $0 | $0 |
| Jacob Licht | Past President | 10 | $0 | $0 | $0 | $0 |
| Rebecca Maher | President | 10 | $0 | $0 | $0 | $0 |
Jennifer Whitman
Executive Director
$90K
Hrs/Wk
40
Compensation
$90K
Related Orgs
$0
Other
$0
Destiny Bachman
Treasurer
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Jon Fisher
Secretary
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Steven Maldonado
Vice President
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jacob Licht
Past President
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Rebecca Maher
President
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Austin Halls | Board Member | 2 | $0 | $0 | $0 | $0 |
| Bryn Webb Md | Board Member | 2 | $0 | $0 | $0 | $0 |
| Kathryn Kraus | Board Member | 2 | $0 | $0 | $0 | $0 |
| Kiowana Phillips | Board Member | 2 | $0 | $0 | $0 | $0 |
| Vicky Mccarrell | Board Member | 2 | $0 | $0 | $0 | $0 |
Austin Halls
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Bryn Webb Md
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Kathryn Kraus
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $183.7K |
| $2.4M |
| $2.3M |
| 2020 | $104.4K | $66.3K | $600.2K | $1.6M | $1.4M |
| 2019 | $232.4K | $182.8K | $321.3K | $1.8M | $1.8M |
| 2018 | $331.4K | $180.3K | $414.7K | $1.8M | $1.8M |
| 2017 | $275.3K | $167.7K | $277.8K | $2M | $2M |
| 2016 | $786.1K | $667.8K | $479.5K | $2M | $2M |
| 2015 | $652.7K | $643.5K | $110.9K | $1.6M | $1.6M |
| 2014 | $746.3K | $674.8K | $242.6K | $1.1M | $1.1M |
| 2013 | $124.4K | $121.9K | $45K | $618.9K | $618.9K |
| 2012 | $213.9K | $123.3K | $250.4K | $539.6K | $539.6K |
| 2011 | $141.8K | $134.1K | $73.3K | $576.1K | $576.1K |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990-EZ | — |
Kiowana Phillips
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Vicky Mccarrell
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0