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Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$453.9K
Total Contributions
$408.6K
Total Expenses
▼$652.3K
Total Assets
$922.3K
Total Liabilities
▼$0
Net Assets
$922.3K
Officer Compensation
→$132.9K
Other Salaries
$0
Investment Income
$42.8K
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Wendy Carriere | Executive Director | 45 | $123.2K | $0 | $9,697 | $132.9K |
| Michelle Abrams | President | 1 | $0 | $0 | $0 | $0 |
| David Monheit | Treasurer | 1 | $0 | $0 | $0 | $0 |
| Dr Sari Roth Roemer | Secretary | 1 |
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $453.9K | $408.6K | $652.3K | $922.3K | $922.3K |
| 2023 | $382.9K | $355.6K | $207.6K | $1.1M | $1.1M |
| 2022 | $106.2K | $99.4K | $143.2K | $837K | $837K |
| 2021 | $218.1K | $145.8K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| $0 |
| $0 |
| $0 |
| $0 |
Wendy Carriere
Executive Director
$132.9K
Hrs/Wk
45
Compensation
$123.2K
Related Orgs
$0
Other
$9,697
Michelle Abrams
President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
David Monheit
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Dr Sari Roth Roemer
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Cindy Golisch | Director | 1 | $0 | $0 | $0 | $0 |
| Dr Katherine Hunt-Brendish | Director | 1 | $0 | $0 | $0 | $0 |
| Dr Theresa Grebe | Medical Didrector | 1 | $0 | $0 | $0 | $0 |
| Lori Meyorwitz | Board Member Until 5/31/24 | 1 | $0 | $0 | $0 | $0 |
| Sarah Cox | Genetic Counselor | 1 | $0 | $0 | $0 | $0 |
| Stephanie Rothman | Director From 6/1/24 | 1 | $0 | $0 | $0 | $0 |
| Teri Friedland | Director | 1 | $0 | $0 | $0 | $0 |
Cindy Golisch
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Dr Katherine Hunt-Brendish
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Dr Theresa Grebe
Medical Didrector
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $121.5K |
| $963.6K |
| $963.6K |
| 2020 | $131.6K | $126.4K | $116.5K | $868.1K | $852.6K |
| 2019 | $234.1K | $206.8K | $152.6K | $786.6K | $786.6K |
| 2018 | $231.8K | $183.2K | $173.9K | $636K | $634.4K |
| 2017 | $145.3K | $128.5K | $134.8K | $678K | $676.5K |
| 2016 | $164.6K | $137.9K | $167K | $601.3K | $600.5K |
| 2015 | $149.9K | $132.2K | $120.6K | $631.3K | $629.9K |
| 2014 | $194.5K | $152.3K | $108.5K | $601.4K | $600.5K |
| 2013 | $150.4K | — | $95.9K | $458.5K | — |
| 2012 | $169.7K | — | $107K | $380.6K | — |
| 2021 | 990 | Data | PDF not yet published by IRS |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990-EZ | Data |
| 2012 | 990-EZ | Data |
| 2011 | 990-EZ | — |
| 2010 | 990-EZ | — |
| 2009 | 990-EZ | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
Lori Meyorwitz
Board Member Until 5/31/24
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sarah Cox
Genetic Counselor
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Stephanie Rothman
Director From 6/1/24
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Teri Friedland
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0