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Source: IRS Form 990 via ProPublica Nonprofit Explorer
Total Revenue
▼$1.1M
Total Contributions
$529.3K
Total Expenses
▼$1.3M
Total Assets
$2M
Total Liabilities
▼$255K
Net Assets
$1.7M
Officer Compensation
→$0
Other Salaries
$477.9K
Investment Income
▼-$96.3K
Fundraising
▼$0
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$23.1M
Awards Found
9
| Awarding Agency | Description | Amount | Fiscal Year | Period |
|---|---|---|---|---|
| Department of Health and Human Services | SICKLE CELL | $11M | FY2015 | Jun 2015 – May 2021 |
| Department of Health and Human Services | SICKLE CELL | $5.7M | FY2015 | Jun 2015 – May 2021 |
| Department of Health and Human Services | SICKLE CELL DISEASE & NEWBORN SCREENING PROGRAM | $1.7M | FY2002 | Sep 2002 – May 2011 |
| Department of Health and Human Services | SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM | $1.1M | FY2021 | Sep 2021 – Aug 2026 |
| Department of Health and Human Services | SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM | $1.1M | FY2021 | Sep 2021 – Aug 2026 |
| Department of Health and Human Services | SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM | $895.8K | FY2022 | Sep 2022 – Aug 2026 |
| Department of Health and Human Services | GENETIC SERVICES PROJECT | $555K | FY2008 | Jun 2008 – May 2011 |
| Department of Health and Human Services | GENETIC SERVICES PROJECT | $555K | FY2008 | Jun 2008 – May 2011 |
| Department of Health and Human Services | GENETIC SERVICES PROJECT | $550.9K | FY2008 | Jun 2008 – May 2012 |
Department of Health and Human Services
$11M
SICKLE CELL
Department of Health and Human Services
$5.7M
SICKLE CELL
Department of Health and Human Services
$1.7M
SICKLE CELL DISEASE & NEWBORN SCREENING PROGRAM
Department of Health and Human Services
$1.1M
SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM
Department of Health and Human Services
$1.1M
SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM
Department of Health and Human Services
$895.8K
SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM
Department of Health and Human Services
$555K
GENETIC SERVICES PROJECT
Department of Health and Human Services
$555K
GENETIC SERVICES PROJECT
Department of Health and Human Services
$550.9K
GENETIC SERVICES PROJECT
Source: Federal Audit Clearinghouse (fac.gov)
Total Audits
5
Clean Audits
5
Material Weakness
No
Noncompliance Issues
No
| Year | Status | Financial Report | Federal Expenditure | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2020 | Clean | Unmodified (Clean) | $3.9M | Yes | 2021-08-16 |
| 2019 | Clean | Unmodified (Clean) | $3M | Yes | 2020-07-30 |
| 2018 | Clean | Unmodified (Clean) | $2.9M | Yes | 2019-09-08 |
| 2017 | Clean | Unmodified (Clean) | $1.6M | No | 2018-09-18 |
| 2016 | Clean | Unmodified (Clean) | $2.8M | No | 2017-08-27 |
Financial Report
Unmodified (Clean)
Federal Expenditure
$3.9M
Financial Report
Unmodified (Clean)
Federal Expenditure
$3M
Financial Report
Unmodified (Clean)
Federal Expenditure
$2.9M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.6M
Financial Report
Unmodified (Clean)
Federal Expenditure
$2.8M
Source: IRS e-Filed Form 990
No officer or director compensation data available for this organization.
This data is sourced from IRS Form 990, Part VII. It may not be available if the organization files Form 990-N (e-Postcard) or has not yet been enriched.
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2022 | $1.1M | $529.3K | $1.3M | $2M | $1.7M |
| 2021 | $3.5M | $2.2M | $2.8M | $2.5M | $2.1M |
| 2020 | $5.8M | $5M | $5M | $2.2M | $1.6M |
| 2019 | $4.3M | $3.5M | $4.2M | $1.4M | $752.8K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS Form 990 via ProPublica Nonprofit Explorer (Tax Year 2022)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File · ProPublica Nonprofit Explorer
Tax-deductibility: IRS Publication 78
| 2018 | $4.2M | $3.6M | $4M | $1.3M | $646.9K |
| 2017 | $2.6M | $2.1M | $2.7M | $938.3K | $503.8K |
| 2016 | $3.9M | $3.4M | $3.8M | $1.1M | $519.6K |
| 2015 | $1.8M | $1.4M | $1.9M | $1M | $451.3K |
| 2014 | $816.7K | $488.7K | $951.1K | $987.6K | $582.4K |
| 2013 | $1.1M | $830.4K | $824.8K | $1.1M | $708.6K |
| 2012 | $1.1M | $905.8K | $784K | $784.5K | $410.2K |
| 2011 | $1.2M | $955K | $1.2M | $452.2K | $73.6K |
| 2021 | 990 | DataIRS e-File |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data | PDF not yet published by IRS |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |