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To advocate for people affected by sickle cell conditions and empower community-based organizations.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$1.8M
Program Spending
30%
of total expenses go to program services
Total Contributions
$601.2K
Total Expenses
▼$1.7M
Total Assets
$2.3M
Total Liabilities
▼$423.9K
Net Assets
$1.8M
Officer Compensation
→$19.1K
Other Salaries
$194K
Investment Income
$84.3K
Fundraising
▼N/A
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$23.1M
Awards Found
9
| Awarding Agency | Description | Amount | Fiscal Year | Period | Link |
|---|---|---|---|---|---|
| Department of Health and Human Services | SICKLE CELL | $11M | FY2015 | Jun 2015 – May 2021 | Open → |
| Department of Health and Human Services | SICKLE CELL | $5.7M | FY2015 | Jun 2015 – May 2021 | Open → |
| Department of Health and Human Services | SICKLE CELL DISEASE & NEWBORN SCREENING PROGRAM | $1.7M | FY2002 | Sep 2002 – May 2011 | Open → |
| Department of Health and Human Services | SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM | $1.1M | FY2021 | Sep 2021 – Aug 2026 | Open → |
| Department of Health and Human Services | SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM | $1.1M | FY2021 | Sep 2021 – Aug 2026 | Open → |
| Department of Health and Human Services | SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM | $895.8K | FY2022 | Sep 2022 – Aug 2027 | Open → |
| Department of Health and Human Services | GENETIC SERVICES PROJECT | $555K | FY2008 | Jun 2008 – May 2011 | Open → |
| Department of Health and Human Services | GENETIC SERVICES PROJECT | $555K | FY2008 | Jun 2008 – May 2011 | Open → |
| Department of Health and Human Services | GENETIC SERVICES PROJECT | $550.9K | FY2008 | Jun 2008 – May 2012 | Open → |
Department of Health and Human Services
$1.7M
SICKLE CELL DISEASE & NEWBORN SCREENING PROGRAM
Department of Health and Human Services
$1.1M
SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM
Department of Health and Human Services
$1.1M
SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM
Department of Health and Human Services
$895.8K
SICKLE CELL DISEASE NEWBORN SCREENING FOLLOW-UP PROGRAM
Department of Health and Human Services
$550.9K
GENETIC SERVICES PROJECT
Source: Federal Audit Clearinghouse (fac.gov)
Years audited
5
Clean years
5
Material Weakness
No
Noncompliance Issues
No
| Year | Status | Financial Report | Federal Expenditurecombined across all audits filed that year | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2020 | Clean | Unmodified (Clean) | $3.9M | Yes | 2021-08-16 |
| 2019 | Clean | Unmodified (Clean) | $3M | Yes | 2020-07-30 |
| 2018 | Clean | Unmodified (Clean) | $2.9M | Yes | 2019-09-08 |
| 2017 | Clean | Unmodified (Clean) | $1.6M | No | 2018-09-18 |
| 2016 | Clean | Unmodified (Clean) | $2.8M | No | 2017-08-27 |
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.9M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$2.9M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$1.6M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$2.8M
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $1.8M | $601.2K | $1.7M | $2.3M | $1.8M |
| 2023IRS e-File | $1.8M | $624.6K | $1.8M | $2.3M | $1.7M |
| 2022 | $1.1M | $529.3K | $1.3M | $2M | $1.7M |
| 2021 | $3.5M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Beverley Francis-Gibson | President/ceo | 45 | $186K | $0 | $0 | $186K |
| David N Braxton Phd | Chair | 5 | $0 | $0 | $0 | $0 |
| Ed Folwers | Treasurer | 5 | $0 | $0 | $0 | $0 |
| Jakela Parker | Vice Chair | 5 | $0 | $0 | $0 | $0 |
| Genice T Nelson Dnp Aprn | Secretary | 5 | $0 | $0 | $0 | $0 |
Beverley Francis-Gibson
President/ceo
$186K
Hrs/Wk
45
Compensation
$186K
Related Orgs
$0
Other
$0
David N Braxton Phd
Chair
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Ed Folwers
Treasurer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Jakela Parker
Vice Chair
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Genice T Nelson Dnp Aprn
Secretary
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Leroy Hughes | Vice President | 45 | $0 | $0 | $0 | $0 |
Leroy Hughes
Vice President
$0
Hrs/Wk
45
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Bernie Lawrence-Watkins | Member | 5 | $0 | $0 | $0 | $0 |
| Biree Andemarian Md | Chief Medical Officer | 5 | $0 | $0 | $0 | $0 |
| Christopher Hollins Mba | Member | 5 | $0 | $0 | $0 | $0 |
| Crystal A Riley Mha Mba | Member | 5 | $0 | $0 | $0 | $0 |
| Gwendolyn Polesdo | Member | 5 | $0 | $0 | $0 | $0 |
| Kim Smith-Whitley Md |
Bernie Lawrence-Watkins
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Biree Andemarian Md
Chief Medical Officer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Christopher Hollins Mba
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
| $2.2M |
| $2.8M |
| $2.5M |
| $2.1M |
| 2020 | $5.8M | $5M | $5M | $2.2M | $1.6M |
| 2019 | $4.3M | $3.5M | $4.2M | $1.4M | $752.8K |
| 2018 | $4.2M | $3.6M | $4M | $1.3M | $646.9K |
| 2017 | $2.6M | $2.1M | $2.7M | $938.3K | $503.8K |
| 2016 | $3.9M | $3.4M | $3.8M | $1.1M | $519.6K |
| 2015 | $1.8M | $1.4M | $1.9M | $1M | $451.3K |
| 2014 | $816.7K | $488.7K | $951.1K | $987.6K | $582.4K |
| 2013 | $1.1M | $830.4K | $824.8K | $1.1M | $708.6K |
| 2012 | $1.1M | $905.8K | $784K | $784.5K | $410.2K |
| 2011 | $1.2M | $955K | $1.2M | $452.2K | $73.6K |
| 2021 | 990 | DataIRS e-File |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data | PDF not yet published by IRS |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| Member |
| 5 |
| $0 |
| $0 |
| $0 |
| $0 |
| Lennette J Benjamin Md | Board Member Emeritus | 5 | $0 | $0 | $0 | $0 |
| Lewis Hsu Md | Vice Chief Medical Officer | 5 | $0 | $0 | $0 | $0 |
| Regina Hartfield | Member | 5 | $0 | $0 | $0 | $0 |
| Tanique Mitchell | Member | 5 | $0 | $0 | $0 | $0 |
| Thomas L Johnson Jd | Member | 5 | $0 | $0 | $0 | $0 |
| Wanda Whitten-Shurney Md | Member | 5 | $0 | $0 | $0 | $0 |
Crystal A Riley Mha Mba
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Gwendolyn Polesdo
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Kim Smith-Whitley Md
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Lennette J Benjamin Md
Board Member Emeritus
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Lewis Hsu Md
Vice Chief Medical Officer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Regina Hartfield
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Tanique Mitchell
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Thomas L Johnson Jd
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Wanda Whitten-Shurney Md
Member
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0