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TO DRIVE A NEW ERA OF DISCOVERY IN DISEASE ORIENTED SCIENCE AND TO MENTOR TOMORROW'S LEADERS IN AN INSPIRING AND DIVERSE ENVIRONMENT.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$119.2M
Program Spending
85%
of total expenses go to program services
Total Contributions
$16.1M
Total Expenses
▼$144.8M
Total Assets
$372M
Total Liabilities
▼$204.4M
Net Assets
$167.6M
Officer Compensation
→$7.1M
Other Salaries
$49M
Investment Income
$8.3M
Fundraising
▼N/A
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$378.9K
Awards Found
1
| Awarding Agency | Description | Amount | Fiscal Year | Period | Link |
|---|---|---|---|---|---|
| Department of Health and Human Services | MODIFIERS OF HUNTINGTIN AND ALPHA-SYNUCLEIN TOXICITY | $378.9K | FY2004 | Jan 2004 – Dec 2008 | Open → |
Department of Health and Human Services
$378.9K
MODIFIERS OF HUNTINGTIN AND ALPHA-SYNUCLEIN TOXICITY
Source: Federal Audit Clearinghouse (fac.gov)
Years audited
10
Clean years
10
Material Weakness
No
Noncompliance Issues
No
| Year | Status | Financial Report | Federal Expenditurecombined across all audits filed that year | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2025 | Clean | Unmodified (Clean) | $56.2M | Yes | 2026-06-18 |
| 2024 | Clean | Unmodified (Clean) | $65.1M | Yes | 2025-05-30 |
| 2023 | Clean | Unmodified (Clean) | $63.3M | Yes | 2024-06-27 |
| 2022 | Clean | Unmodified (Clean) | $58.3M | Yes | 2023-06-25 |
| 2021 | Clean | Unmodified (Clean) | $50.2M | Yes | 2022-06-29 |
| 2020 | Clean | Unmodified (Clean) | $45.1M | Yes | 2021-06-17 |
| 2019 | Clean | Unmodified (Clean) | $39.1M | Yes | 2020-06-14 |
| 2018 | Clean | Unmodified (Clean) | $37.3M | Yes | 2019-06-09 |
| 2017 | Clean | Unmodified (Clean) | $39.3M | Yes | 2018-06-20 |
| 2016 | Clean | Unmodified (Clean) | $35.4M | Yes | 2017-06-18 |
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$56.2M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$65.1M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$63.3M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$58.3M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$50.2M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$45.1M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$39.1M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$37.3M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$39.3M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$35.4M
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $119.2M | $16.1M | $144.8M | $372M | $167.6M |
| 2023IRS e-File | $119.2M | $20.2M | $127.7M | $365.3M | $172.4M |
| 2022 | $144.8M | $55.2M | $119M | $358.3M | $167.6M |
| 2021 | $143M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Deepak Srivastava | President | 40 | $1.1M | $0 | $93.6K | $1.2M |
| Robert Obana | COO | 40 | $631.3K | $0 | $82.5K | $713.8K |
Deepak Srivastava
President
$1.2M
Hrs/Wk
40
Compensation
$1.1M
Related Orgs
$0
Other
$93.6K
Robert Obana
COO
$713.8K
Hrs/Wk
40
Compensation
$631.3K
Related Orgs
$0
Other
$82.5K
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Alex Marson | Director | 40 | $669.7K | $0 | $76.4K | $746.1K |
| Lennart Mucke | Director | 40 | $622K | $0 | $66.2K | $688.1K |
| Steven M Finkbeiner | Director | 40 | $565.3K | $0 | $88.6K |
Alex Marson
Director
$746.1K
Hrs/Wk
40
Compensation
$669.7K
Related Orgs
$0
Other
$76.4K
Lennart Mucke
Director
$688.1K
Hrs/Wk
40
Compensation
$622K
Related Orgs
$0
Other
$66.2K
Steven M Finkbeiner
Director
$653.9K
Hrs/Wk
40
Compensation
$565.3K
Related Orgs
$0
Other
$88.6K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Andrew S Garb | Trustee | 3 | $425K | $0 | $0 | $425K |
| Nicholas J Simon | Trustee | 3 | $425K | $0 | $0 | $425K |
| William Price | Trustee | 3 | $425K | $0 | $0 | $425K |
Andrew S Garb
Trustee
$425K
Hrs/Wk
3
Compensation
$425K
Related Orgs
$0
Other
$0
Nicholas J Simon
Trustee
$425K
Hrs/Wk
3
Compensation
$425K
Related Orgs
$0
Other
$0
William Price
Trustee
$425K
Hrs/Wk
3
Compensation
$425K
Related Orgs
$0
Other
$0
| $70.6M |
| $103M |
| $367.5M |
| $176.1M |
| 2020 | $84.3M | $8.9M | $93.5M | $318.4M | $120.8M |
| 2019 | $62.8M | $12.8M | $82.3M | $314.2M | $124.8M |
| 2018 | $86.3M | $23.9M | $83.6M | $257.4M | $131.1M |
| 2017 | $84.6M | $19.7M | $83.9M | $270.7M | $132.6M |
| 2016 | $67.4M | $802.7K | $84.5M | $259.8M | $119M |
| 2015 | $66.8M | $4.8M | $82.9M | $266M | $132.1M |
| 2014 | $86.3M | $11.9M | $81.6M | $287.4M | $154.4M |
| 2013 | $80.2M | $2.9M | $78.8M | $292.1M | $154.9M |
| 2012 | $88.1M | $10.8M | $82.9M | $311.3M | $156M |
| 2011 | $73.2M | $6.3M | $86.6M | $319.5M | $152.9M |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| $653.9K |
| Melanie Ott | Director | 40 | $550.3K | $0 | $93.6K | $643.9K |
| Katherine Pollard | Director | 40 | $529.7K | $0 | $93.6K | $623.3K |
| Benoit Bruneau | Director | 40 | $525.5K | $0 | $93.6K | $619.2K |
| Jennifer Crosby | VP Of People Services | 40 | $491.9K | $0 | $126.4K | $618.2K |
| Stephen Freedman | VP For Corp Liaison & Ventures | 40 | $489.7K | $0 | $66.2K | $555.9K |
| Robert Wicks | VP Of Philanthropy | 40 | $448.8K | $0 | $60.1K | $508.9K |
| Katerina Akassoglou | Sr. Investigator | 40 | $389.3K | $0 | $93.6K | $483K |
| Michelle Sibly | VP Of Finance | 40 | $375.1K | $0 | $81.8K | $456.9K |
Melanie Ott
Director
$643.9K
Hrs/Wk
40
Compensation
$550.3K
Related Orgs
$0
Other
$93.6K
Katherine Pollard
Director
$623.3K
Hrs/Wk
40
Compensation
$529.7K
Related Orgs
$0
Other
$93.6K
Benoit Bruneau
Director
$619.2K
Hrs/Wk
40
Compensation
$525.5K
Related Orgs
$0
Other
$93.6K
Jennifer Crosby
VP Of People Services
$618.2K
Hrs/Wk
40
Compensation
$491.9K
Related Orgs
$0
Other
$126.4K
Stephen Freedman
VP For Corp Liaison & Ventures
$555.9K
Hrs/Wk
40
Compensation
$489.7K
Related Orgs
$0
Other
$66.2K
Robert Wicks
VP Of Philanthropy
$508.9K
Hrs/Wk
40
Compensation
$448.8K
Related Orgs
$0
Other
$60.1K
Katerina Akassoglou
Sr. Investigator
$483K
Hrs/Wk
40
Compensation
$389.3K
Related Orgs
$0
Other
$93.6K
Michelle Sibly
VP Of Finance
$456.9K
Hrs/Wk
40
Compensation
$375.1K
Related Orgs
$0
Other
$81.8K