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TO FUND TRANSFORMATIVE RESEARCH TO FIND TREATMENTS, AND ULTIMATELY A CURE, FOR HUNTINGTON'S DISEASE.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$7.9M
Program Spending
86%
of total expenses go to program services
Total Contributions
$6.6M
Total Expenses
▼$4.5M
Total Assets
$22M
Total Liabilities
▼$2.8M
Net Assets
$19.1M
Officer Compensation
→$164.8K
Other Salaries
$370.6K
Investment Income
$1.2M
Fundraising
▼$38.3K
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $2M
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
| SAINT LOUIS, MO | $1.1M | Cash | SCIENTIFIC RESEARCH | |
NORTHWESTERN UNIVERSITY36-2167817 | EVANSTON, IL | $200K | Cash | SCIENTIFIC RESEARCH |
| REDWOOD CITY, CA | $175.7K | Cash | SCIENTIFIC RESEARCH | |
CENTER FOR GENOMIC MEDICINE MASSACHUSETTS GENERAL HOSPITAL | BOSTON, MA | $100K | Cash | SCIENTIFIC RESEARCH |
REGENTS OF THE UNIVERSITY OF CA IRVINE95-2226406 | IRVINE, CA | $100K | Cash | SCIENTIFIC RESEARCH |
REGENTS OF THE UNIV OF CA - SAN DIEGO95-6006144 | LA JOLLA, CA | $100K | Cash | SCIENTIFIC RESEARCH |
CHILDREN'S HOSPITAL OF PHILADELPHIA THE23-1352166 | PHILADELPHIA, PA | $100K | Cash | SCIENTIFIC RESEARCH |
THE REGENTS UN OF CALIFORNIA -LOSANGELES95-6006143 | LOS ANGELES, CA | $100K | Cash | SCIENTIFIC RESEARCH |
MASSACHUSETTS INSTITUTE OF TECHNOLOGY | CAMBRIDGE, MA | $30K | Cash | SCIENTIFIC RESEARCH |
| Total | $2M | |||
SAINT LOUIS, MO
$1.1M
EVANSTON, IL
$200K
REDWOOD CITY, CA
$175.7K
CENTER FOR GENOMIC MEDICINE MASSACHUSETTS GENERAL HOSPITAL
BOSTON, MA
$100K
IRVINE, CA
$100K
LA JOLLA, CA
$100K
PHILADELPHIA, PA
$100K
LOS ANGELES, CA
$100K
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
CAMBRIDGE, MA
$30K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $7.9M | $6.6M | $4.5M | $22M | $19.1M |
| 2023IRS e-File | $2.6M | $2.1M | $4.7M | $18.2M | $15.1M |
| 2022 | $4.5M | $4.4M | $2.6M | $16.8M | $15.4M |
| 2021IRS e-File |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Meghan Donaldson | CEO | 40 | $110K | $0 | $0 | $110K |
| Tim Kelleher | CFO | 6 | $42.8K | $0 | $0 | $42.8K |
| Karen Newman | Chair | 24 | $12K | $0 | $0 | $12K |
| Nancy S Wexler Phd | President | 1 | $0 | $0 | $0 | $0 |
| Anne B Young Md Phd | Vice Chair | 1 | $0 | $0 | $0 | $0 |
| Bruce Donaldson | Treasurer | 1 | $0 | $0 | $0 | $0 |
| Alice Wexler Phd | Secretary | 1 | $0 | $0 | $0 | $0 |
Meghan Donaldson
CEO
$110K
Hrs/Wk
40
Compensation
$110K
Related Orgs
$0
Other
$0
Tim Kelleher
CFO
$42.8K
Hrs/Wk
6
Compensation
$42.8K
Related Orgs
$0
Other
$0
Karen Newman
Chair
$12K
Hrs/Wk
24
Compensation
$12K
Related Orgs
$0
Other
$0
Nancy S Wexler Phd
President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Anne B Young Md Phd
Vice Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Bruce Donaldson
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Alice Wexler Phd
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Sarah Hernandez | Dir. Of Research Programs | 40 | $143.9K | $0 | $55.9K | $199.8K |
| Julie Porter | Dir. Of Administration | 40 | $116.1K | $0 | $30K | $146.1K |
| Erica Matisz | Dir. Of Development | 40 | $108.5K | $0 | $0 | $108.5K |
Sarah Hernandez
Dir. Of Research Programs
$199.8K
Hrs/Wk
40
Compensation
$143.9K
Related Orgs
$0
Other
$55.9K
Julie Porter
Dir. Of Administration
$146.1K
Hrs/Wk
40
Compensation
$116.1K
Related Orgs
$0
Other
$30K
Erica Matisz
Dir. Of Development
$108.5K
Hrs/Wk
40
Compensation
$108.5K
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Berta A Gehry | Director | 1 | $0 | $0 | $0 | $0 |
| C Frank Bennett Phd | Director | 1 | $0 | $0 | $0 | $0 |
| David Housman Phd | Director | 1 | $0 | $0 | $0 | $0 |
| David Zwally | Director | 1 | $0 | $0 | $0 | $0 |
| Frank O Gehry | Director | 1 | $0 | $0 | $0 | $0 |
| Herbert Pardes Md | Director (through 4/24) |
Berta A Gehry
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
C Frank Bennett Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
David Housman Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $3.8M |
| $2.8M |
| $3M |
| $18.1M |
| $15.8M |
| 2020 | $4.1M | $3.7M | $2.5M | $15.5M | $13.7M |
| 2019 | $2M | $1.7M | $2.3M | $12.5M | $11.3M |
| 2018 | $2.7M | $2.2M | $2.1M | $10.9M | $10.1M |
| 2017 | $1.1M | $747.4K | $2.5M | $11.9M | $10.5M |
| 2016 | $2.3M | $2.1M | $2M | $11.7M | $11.2M |
| 2015 | $2.4M | $1.9M | $1.9M | $11.1M | $10.6M |
| 2014 | $4.2M | $3.1M | $1.8M | $11.4M | $10.8M |
| 2013 | $2.4M | $1.1M | $2.2M | $10M | $9.2M |
| 2012 | $2.7M | $2M | $2.6M | $9.3M | $8.9M |
| 2011 | $926.1K | $661.5K | $2.1M | $9.4M | $8.8M |
| 2010 | $2.6M | $2.2M | $2.1M | $10.9M | $10.4M |
| 2021 | 990 | DataIRS e-File |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | Data |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| Joan Leiman Phd | Director | 1 | $0 | $0 | $0 | $0 |
| Lauren Baker Pinkus | Director | 1 | $0 | $0 | $0 | $0 |
| Leslie M Thompson Phd | Director | 1 | $0 | $0 | $0 | $0 |
| Melissa Moser | Director | 1 | $0 | $0 | $0 | $0 |
| Robi Blumenstein | Director | 1 | $0 | $0 | $0 | $0 |
| Sandy Fox | Director | 1 | $0 | $0 | $0 | $0 |
| Tacie Fox | Director | 1 | $0 | $0 | $0 | $0 |
David Zwally
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Frank O Gehry
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Herbert Pardes Md
Director (through 4/24)
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Joan Leiman Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Lauren Baker Pinkus
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Leslie M Thompson Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Melissa Moser
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Robi Blumenstein
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sandy Fox
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Tacie Fox
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0