Loading organization details...
Loading organization details...
IMPROVE THE LIVES OF INDIVIDUALS WITH PKU AND PURSUE A CURE FOR PKU.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$2.6M
Program Spending
80%
of total expenses go to program services
Total Contributions
$2.1M
Total Expenses
▼$2.1M
Total Assets
$5.3M
Total Liabilities
▼$356.8K
Net Assets
$5M
Officer Compensation
→$217.1K
Other Salaries
$377.7K
Investment Income
$439.9K
Fundraising
▼$361K
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $257.8K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
OREGON HEALTH AND SCIENCE UNIVERSITY23-1352685 | PORTLAND, OR | $249.4K | Cash | PKU RESEARCH |
MARYLAND ALLIANCE OF PKU FAMILIES INC52-1879326 | PASADENA, MD | $8,440 | Cash | PKU RESEARCH |
| Total | $257.8K | |||
PORTLAND, OR
$249.4K
PASADENA, MD
$8,440
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$12K
Awards Found
1
| Awarding Agency | Description | Amount | Fiscal Year | Period | Link |
|---|---|---|---|---|---|
| Department of Health and Human Services | NATIONAL PKU ALLIANCE 2014 & 2016 CONFERENCE - SCIENTIFIC EXCHANGE | $12K | FY2013 | Sep 2013 – Aug 2014 | Open → |
Department of Health and Human Services
$12K
NATIONAL PKU ALLIANCE 2014 & 2016 CONFERENCE - SCIENTIFIC EXCHANGE
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
990-N (e-Postcard) Filing History
This organization files simplified Form 990-N (annual gross receipts ≤ $50,000).
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $2.6M | $2.1M | $2.1M | $5.3M | $5M |
| 2023IRS e-File | $1.3M | $1.5M | $1.9M | $4.8M | $4.6M |
| 2022 | $2.2M | $2.3M | $1.8M | $5M | $4.9M |
| 2021 | $1.9M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Catherine Warren | Executive Director | 40 | $118.3K | $0 | $1,577 | $119.9K |
| Lisa Milberg Thru May 24 | Executive Director | 40 | $97.2K | $0 | $0 | $97.2K |
| Rhonda Connolly | President | 10 | $0 | $0 | $0 | $0 |
| Elizabeth Aselage | Vice President | 2 | $0 | $0 | $0 | $0 |
| Alison Reynolds | Secretary | 2 | $0 | $0 | $0 | $0 |
| Dan Lazzari | Treasurer | 2 | $0 | $0 | $0 | $0 |
Catherine Warren
Executive Director
$119.9K
Hrs/Wk
40
Compensation
$118.3K
Related Orgs
$0
Other
$1,577
Lisa Milberg Thru May 24
Executive Director
$97.2K
Hrs/Wk
40
Compensation
$97.2K
Related Orgs
$0
Other
$0
Rhonda Connolly
President
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Elizabeth Aselage
Vice President
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Alison Reynolds
Secretary
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Dan Lazzari
Treasurer
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Susan Gray | Director Of Development | 40 | $140.4K | $0 | $2,739 | $143.1K |
Susan Gray
Director Of Development
$143.1K
Hrs/Wk
40
Compensation
$140.4K
Related Orgs
$0
Other
$2,739
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Adam Sherman | Director | 2 | $0 | $0 | $0 | $0 |
| Charles Buckler | Director | 2 | $0 | $0 | $0 | $0 |
| Christina Love | Director | 2 | $0 | $0 | $0 | $0 |
| Heidi Maxfield | Director | 2 | $0 | $0 | $0 | $0 |
| Lillian Isabella | Director | 2 | $0 | $0 | $0 | $0 |
| Mark Gralen | Director |
Adam Sherman
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Charles Buckler
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Christina Love
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $1.7M |
| $1.4M |
| $5.3M |
| $5M |
| 2020 | $1.7M | $1.7M | $1.2M | $4.6M | $4.4M |
| 2019 | $1.4M | $1.4M | $1.3M | $4M | $3.4M |
| 2018 | $2M | $2M | $1.8M | $3.5M | $3.3M |
| 2017 | $1.6M | $1.7M | $892.6K | $3.1M | $3.1M |
| 2016 | $1.5M | $1.2M | $963.6K | $2.5M | $2.4M |
| 2015 | $950.3K | $701.1K | $658.4K | $1.9M | $1.9M |
| 2014 | $990.2K | $950K | $1.1M | $1.6M | $1.6M |
| 2013 | $1.3M | $978.7K | $636.3K | $1.8M | $1.7M |
| 2012 | $856K | $810K | $675.2K | $1M | $984.7K |
| 2011 | $811.5K | $809.5K | $527.6K | $812.3K | $803.9K |
| 2021 | 990 | Data | PDF not yet published by IRS |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2 |
| $0 |
| $0 |
| $0 |
| $0 |
| Michael Finkel | Director | 2 | $0 | $0 | $0 | $0 |
| Susan Berry | Director | 2 | $0 | $0 | $0 | $0 |
Heidi Maxfield
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Lillian Isabella
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Mark Gralen
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Michael Finkel
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Susan Berry
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0