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Source: IRS Form 990 via ProPublica Nonprofit Explorer
Total Revenue
▼$14.8M
Total Contributions
$7.5M
Total Expenses
▼$15.6M
Total Assets
$10.7M
Total Liabilities
▼$4.6M
Net Assets
$6.1M
Officer Compensation
→$1.1M
Other Salaries
$3.9M
Investment Income
▼$119K
Fundraising
▼$595.2K
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$236.5K
Awards Found
10
| Awarding Agency | Description | Amount | Fiscal Year | Period |
|---|---|---|---|---|
| Department of Health and Human Services | 13TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING | $31K | FY2009 | Jun 2009 – May 2010 |
| Department of Health and Human Services | 18TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING | $28K | FY2014 | Jun 2014 – May 2015 |
| Department of Health and Human Services | 16TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING | $27.5K | FY2012 | Jun 2012 – May 2013 |
| Department of Health and Human Services | 21ST SMA RESEARCHER MEETING | $25K | FY2017 | Jun 2017 – May 2018 |
| Department of Health and Human Services | 15TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING | $25K | FY2011 | Jun 2011 – May 2012 |
| Department of Health and Human Services | 14TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING | $25K | FY2010 | Jun 2010 – May 2011 |
| Department of Health and Human Services | 20TH SMA RESEARCHER MEETING | $20K | FY2016 | Jun 2016 – May 2017 |
| Department of Health and Human Services | 18TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING | $20K | FY2015 | Jun 2015 – May 2016 |
| Department of Health and Human Services | 17TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING | $20K | FY2013 | Jun 2013 – Jun 2014 |
| Department of Health and Human Services | 22ND SMA RESEARCHER MEETING | $15K | FY2018 | Jun 2018 – May 2019 |
Department of Health and Human Services
$31K
13TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING
Department of Health and Human Services
$28K
18TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING
Department of Health and Human Services
$27.5K
16TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING
Department of Health and Human Services
$25K
21ST SMA RESEARCHER MEETING
Department of Health and Human Services
$25K
15TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING
Department of Health and Human Services
$25K
14TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING
Department of Health and Human Services
$20K
20TH SMA RESEARCHER MEETING
Department of Health and Human Services
$20K
18TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING
Department of Health and Human Services
$20K
17TH ANNUAL INTERNATIONAL SPINAL MUSCULAR ATROPHY RESEARCH GROUP MEETING
Department of Health and Human Services
$15K
22ND SMA RESEARCHER MEETING
Source: IRS e-Filed Form 990
No officer or director compensation data available for this organization.
This data is sourced from IRS Form 990, Part VII. It may not be available if the organization files Form 990-N (e-Postcard) or has not yet been enriched.
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024 | $14.8M | $7.5M | $15.6M | $10.7M | $6.1M |
| 2023 | $13.7M | $9.4M | $14.2M | $12.7M | $6.8M |
| 2022 | $15M | $9.5M | $14.2M | $11.3M | $7.2M |
| 2021 | $10.4M | $8.6M | $10.1M | $10.2M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2025 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2024 | 990 | ✅IRS e-File | |
| 2023 | 990 | ✅IRS e-File |
Financial data: IRS Form 990 via ProPublica Nonprofit Explorer (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File · ProPublica Nonprofit Explorer
Tax-deductibility: IRS Publication 78
| $6.6M |
| 2020 | $12.1M | $8.1M | $11.1M | $10.2M | $6.1M |
| 2019 | $14.3M | $9.3M | $14.1M | $10.4M | $5.1M |
| 2018 | $11.5M | $10.8M | $9.7M | $8.2M | $5M |
| 2017 | $7.9M | $5.8M | $7.6M | $5M | $2.7M |
| 2016 | $6.1M | $5.1M | $5.9M | $3.9M | $2.3M |
| 2015 | $5.2M | $4.7M | $5.4M | $3.3M | $2.1M |
| 2014 | $5.1M | $4.6M | $4.8M | $3.4M | $2.2M |
| 2013 | $4.9M | $4.6M | $4.5M | $3.4M | $2M |
| 2012 | $4.5M | $4.2M | $3.7M | $2.6M | $1.6M |
| 2011 | $4.5M | $3.6M | $3.1M | $1.7M | $835.7K |
| 2022 | 990 | ✅ |
| 2021 | 990 | ✅ |
| 2020 | 990 | ✅ |
| 2019 | 990 | ✅ |
| 2018 | 990 | ✅ |
| 2017 | 990 | ✅ |
| 2016 | 990 | ✅ |
| 2015 | 990 | ✅ |
| 2014 | 990 | ✅ |
| 2013 | 990 | ✅ |
| 2012 | 990 | ✅ |
| 2011 | 990 | ✅ |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |