Loading organization details...
Loading organization details...
(1)Help to provide individuals with neuro-muscular diseases or injuries with leading edge technology, equipment and services (2) Raise public awareness toward amyotrophic lateral sclerosis by providing & documenting life adventures for individuals with muscular diseases or injuries.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$8.5M
Program Spending
80%
of total expenses go to program services
Total Contributions
$6.9M
Total Expenses
▼$7.5M
Total Assets
$9.6M
Total Liabilities
▼$493.8K
Net Assets
$9.1M
Officer Compensation
→$339.5K
Other Salaries
$1.4M
Investment Income
$538.6K
Fundraising
▼$1.3M
Tax Year 2022 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $8,611
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
BOSTON CHILDRENS HOSPITAL #504-2774441 | BOSTON, MA | $8,611 | Non-Cash | GENERAL EXEMPT PURPOSE |
| Total | $8,611 | |||
BOSTON, MA
$8,611
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$6M
Awards Found
1
| Awarding Agency | Description | Amount | Fiscal Year | Period | Link |
|---|---|---|---|---|---|
| Department of Health and Human Services | PROVIDE INNOVATIVE TECHNOLOGY, EQUIPMENT AND OTHER SOLUTION TO THOSE LIVING WITH ALS, AND TO THOSE WHO CARE FOR THEM, TO DELIVER GREATER INDEPENDENCE AND A HIGHER QUALITY OF LIFE. | $6M | FY2024 | Aug 2024 – Jul 2025 | Open → |
Department of Health and Human Services
$6M
PROVIDE INNOVATIVE TECHNOLOGY, EQUIPMENT AND OTHER SOLUTION TO THOSE LIVING WITH ALS, AND TO THOSE WHO CARE FOR THEM, TO DELIVER GREATER INDEPENDENCE AND A HIGHER QUALITY OF LIFE.
Source: Federal Audit Clearinghouse (fac.gov)
Years audited
2
Clean years
2
Material Weakness
No
Noncompliance Issues
No
| Year | Status | Financial Report | Federal Expenditurecombined across all audits filed that year | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2025 | Clean | Unmodified (Clean) | $3.9M | No | 2026-07-22 |
| 2024 | Clean | Unmodified (Clean) | $2.1M | No | 2025-06-20 |
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.9M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$2.1M
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $8.5M | $6.9M | $7.5M | $9.6M | $9.1M |
| 2023IRS e-File | $5.6M | $4M | $5.6M | $8.4M | $8.1M |
| 2022IRS e-File | $4.3M | $2.9M | $4.2M | $8.3M | $7.5M |
| 2021 |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Paul Varisco Sr | Chairman | 20 | $0 | $0 | $0 | $0 |
| Thomas Capella | Officer | 5 | $0 | $0 | $0 | $0 |
| James Salters | Officer | 1 | $0 | $0 | $0 | $0 |
| Scott A Fujita | Officer | 0.5 | $0 | $0 | $0 | $0 |
| David Sherman | Officer | 2.5 | $0 | $0 | $0 | $0 |
| Chris Casey Cpa | Officer | 2 | $0 | $0 | $0 | $0 |
Paul Varisco Sr
Chairman
$0
Hrs/Wk
20
Compensation
$0
Related Orgs
$0
Other
$0
Thomas Capella
Officer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
James Salters
Officer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Scott A Fujita
Officer
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
David Sherman
Officer
$0
Hrs/Wk
2.5
Compensation
$0
Related Orgs
$0
Other
$0
Chris Casey Cpa
Officer
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Ashley Mccready | Director | 0.5 | $0 | $0 | $0 | $0 |
| Bryan Fitzpatrick | Director | 2 | $0 | $0 | $0 | $0 |
| Cleland Powell | Director | 1 | $0 | $0 | $0 | $0 |
| Daniel Garske | Director | 0.5 | $0 | $0 | $0 | $0 |
| Danielle Kavanagh | Director | 0.5 | $0 | $0 | $0 | $0 |
| Dave Martin | Director |
Ashley Mccready
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Bryan Fitzpatrick
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Cleland Powell
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $3.5M |
| $2.2M |
| $3.4M |
| $9.8M |
| $9M |
| 2020 | $3M | $2.1M | $2.8M | $9.5M | $8.7M |
| 2019 | $2.5M | $1.9M | $2.4M | $8.5M | $8.4M |
| 2018 | $2.5M | $1.7M | $1.9M | $7.4M | $7.3M |
| 2017 | $2.1M | $1.7M | $1.5M | $7.3M | $7.2M |
| 2016 | $2.3M | $1.5M | $1.6M | $6.5M | $6.4M |
| 2015 | $1.3M | $1.2M | $2.7M | $5.6M | $5.6M |
| 2014 | $7.4M | $7.4M | $1.5M | $7.1M | $7.1M |
| 2013 | $1.7M | $1.4M | $1M | $1.2M | $1.2M |
| 2012 | $900.7K | $900.7K | $408.9K | $504.1K | $502.9K |
| 2011 | $11K | — | $0 | $11.1K | — |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990-EZ | Data |
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| Jenny Lay-Flurrie | Director | 2 | $0 | $0 | $0 | $0 |
| Jim Marggraff | Director | 1 | $0 | $0 | $0 | $0 |
| Judge Tony Hazel | Director | 0.5 | $0 | $0 | $0 | $0 |
| Kathleen Holt | Director | 1 | $0 | $0 | $0 | $0 |
| Kimi Culp | Director | 0.5 | $0 | $0 | $0 | $0 |
| Kyle Brechtel | Director | 1 | $0 | $0 | $0 | $0 |
| Kyle M Gleason | Director | 0.5 | $0 | $0 | $0 | $0 |
| Michel Varisco Gleason | Director | 5 | $0 | $0 | $0 | $0 |
| Michelle Farr | Director | 2 | $0 | $0 | $0 | $0 |
| Mike Mccready | Director | 0.5 | $0 | $0 | $0 | $0 |
| Paul Varisco Jr | Director | 2 | $0 | $0 | $0 | $0 |
| Philip Green | Director | 2 | $0 | $0 | $0 | $0 |
| Rick Dickson | Director | 0.5 | $0 | $0 | $0 | $0 |
| Stephan Rehage | Director | 1 | $0 | $0 | $0 | $0 |
| Stephen Gleason | Director | 10 | $0 | $0 | $0 | $0 |
| Suzanne Alford | Director | 20 | $0 | $0 | $0 | $0 |
| Thomas Mceachin | Director | 1.5 | $0 | $0 | $0 | $0 |
| Vinnie Varisco | Director | 2 | $0 | $0 | $0 | $0 |
Daniel Garske
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Danielle Kavanagh
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Dave Martin
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jenny Lay-Flurrie
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jim Marggraff
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Judge Tony Hazel
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Kathleen Holt
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Kimi Culp
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Kyle Brechtel
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Kyle M Gleason
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Michel Varisco Gleason
Director
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Michelle Farr
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Mike Mccready
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Paul Varisco Jr
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Philip Green
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Rick Dickson
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Stephan Rehage
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Stephen Gleason
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Suzanne Alford
Director
$0
Hrs/Wk
20
Compensation
$0
Related Orgs
$0
Other
$0
Thomas Mceachin
Director
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Vinnie Varisco
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0