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WE WORK COLLABORATIVELY TO ACCELERATE THE PACE OF SCIENCE ON SCN8A AND RELATED DISORDERS IN ORDER TO BRING HOPE AND IMPROVED OUTCOMES FOR ALL THOSE LIVING WITH RARE EPILEPSIES AND THEIR FAMILIES.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$902.2K
Program Spending
58%
of total expenses go to program services
Total Contributions
$853.9K
Total Expenses
▼$496.6K
Total Assets
$1.1M
Total Liabilities
▼$9,549
Net Assets
$1.1M
Officer Compensation
→$100K
Other Salaries
$6,055
Investment Income
$0
Fundraising
▼$60K
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $75K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
University of West Australia | CRAWLEY, Canada | $55K | Cash | Research |
Nationwide Childrens Hosp31-6056230 | Detroit, MI | $20K | Cash | Research |
| Total | $75K | |||
University of West Australia
CRAWLEY, Canada
$55K
Detroit, MI
$20K
Source: USAspending.gov
Federal award data is temporarily unavailable.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
WarningTax-exempt status was revoked on May 15, 2019
Reinstated on May 15, 2019
Exemption type: 03
990-N (e-Postcard) Filing History
This organization files simplified Form 990-N (annual gross receipts ≤ $50,000).
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $902.2K | $853.9K | $496.6K | $1.1M | $1.1M |
| 2023IRS e-File | $586.2K | $585.5K | $310.7K | $689.2K | $671.3K |
| 2022 | $629.4K | $628.8K | $260.1K | $453.9K | $451.6K |
| 2021 |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
Revocation status: IRS Auto-Revocation List
| Total |
|---|
| Gabi Conecker | Executive Dir. | 40 | $100K | $0 | $0 | $100K |
| Jayetta Hecker | Chairman | 40 | $0 | $0 | $0 | $0 |
| Michael Halpern | Secretary | 1 | $0 | $0 | $0 | $0 |
| Mohammad Nabeel Miskeenyar | Treasurer | 1 | $0 | $0 | $0 | $0 |
Gabi Conecker
Executive Dir.
$100K
Hrs/Wk
40
Compensation
$100K
Related Orgs
$0
Other
$0
Jayetta Hecker
Chairman
$0
Hrs/Wk
40
Compensation
$0
Related Orgs
$0
Other
$0
Michael Halpern
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Mohammad Nabeel Miskeenyar
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Anne Thompson Heller | Director | 1 | $0 | $0 | $0 | $0 |
| Ariel Gibbons | Director | 1 | $0 | $0 | $0 | $0 |
| Eric Wengert | Director | 1 | $0 | $0 | $0 | $0 |
| Mandy Mills | Director | 1 | $0 | $0 | $0 | $0 |
| Michael Hammer | Director | 1 | $0 | $0 | $0 | $0 |
Anne Thompson Heller
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Ariel Gibbons
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Eric Wengert
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $328.9K |
| $323.9K |
| $218.2K |
| $202K |
| $182.4K |
| 2020 | $74.8K | — | $21K | $71.8K | — |
| 2021 | 990 | Data |
| 2020 | 990-EZ | Data | PDF not yet published by IRS |
Mandy Mills
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Michael Hammer
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0