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To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy, and legislation.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$1.4M
Program Spending
72%
of total expenses go to program services
Total Contributions
$1.4M
Total Expenses
▼$1.1M
Total Assets
$418.2K
Total Liabilities
▼$0
Net Assets
$418.2K
Officer Compensation
→$133.2K
Other Salaries
$38.5K
Investment Income
$0
Fundraising
▼N/A
Source: USAspending.gov
Federal award data is temporarily unavailable.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
990-N (e-Postcard) Filing History
This organization files simplified Form 990-N (annual gross receipts ≤ $50,000).
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $1.4M | $1.4M | $1.1M | $418.2K | $418.2K |
| 2023IRS e-File | $918.2K | $918.2K | $1M | $124.2K | $124.2K |
| 2022 | $686.7K | $686.7K | $742.7K | $190.8K | $190.8K |
| 2021 | $681.4K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Lakiea Bailey | Executive Director | 160 | $54.7K | $0 | $0 | $54.7K |
| Doris Bailey | Associate Finance Director | 160 | $31K | $0 | $0 | $31K |
| Sharonda Hudson | Director Of Operations | 160 | $25.9K | $0 | $0 | $25.9K |
| Dominique Goodson | Administrative Director | 160 | $16.5K | $0 | $0 | $16.5K |
| Raymona Holloway Lawrence | Director Of Research | 30 | $750 | $0 | $0 | $750 |
| Eric Nti Frempong | Director Of Finance | 10 | $0 | $0 | $0 | $0 |
Lakiea Bailey
Executive Director
$54.7K
Hrs/Wk
160
Compensation
$54.7K
Related Orgs
$0
Other
$0
Doris Bailey
Associate Finance Director
$31K
Hrs/Wk
160
Compensation
$31K
Related Orgs
$0
Other
$0
Sharonda Hudson
Director Of Operations
$25.9K
Hrs/Wk
160
Compensation
$25.9K
Related Orgs
$0
Other
$0
Dominique Goodson
Administrative Director
$16.5K
Hrs/Wk
160
Compensation
$16.5K
Related Orgs
$0
Other
$0
Raymona Holloway Lawrence
Director Of Research
$750
Hrs/Wk
30
Compensation
$750
Related Orgs
$0
Other
$0
Eric Nti Frempong
Director Of Finance
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Mia Robinson | President Of The General Assembly | 30 | $4,300 | $0 | $0 | $4,300 |
Mia Robinson
President Of The General Assembly
$4,300
Hrs/Wk
30
Compensation
$4,300
Related Orgs
$0
Other
$0
| $681.4K |
| $538.2K |
| $246.8K |
| $246.8K |
| 2020 | $347.9K | $347.9K | $244.3K | $103.6K | $103.6K |
| 2019 | $325K | $325K | $325K | $0 | $0 |
| 2018 | $241.4K | $241.4K | $241.4K | $0 | $0 |
| 2017 | $185.3K | — | $171.2K | $1 | — |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990-EZ | Data |