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SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.
Source: IRS Form 990 (Tax Year 2025)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$7.8M
Program Spending
83%
of total expenses go to program services
Total Contributions
$6.9M
Total Expenses
▼$7.6M
Total Assets
$19.5M
Total Liabilities
▼$2.7M
Net Assets
$16.9M
Officer Compensation
→$891.2K
Other Salaries
$2.8M
Investment Income
$842.2K
Fundraising
▼$1.2M
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $1M
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
STANFORD UNIVERSITY SCHOOL OF MEDICINE94-6174066 | STANFORD, CA | $370K | Cash | RESEARCH |
| BALTIMORE, MD | $365K | Cash | RESEARCH | |
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI13-6171197 | NEW YORK, NY | $100K | Cash | RESEARCH |
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA - LOS ANGELES95-6006143 | LOS ANGELES, CA | $100K | Cash | RESEARCH |
YALE UNIVERSITY06-0646973 | NEW HAVEN, CT | $100K | Cash | RESEARCH |
LYON FAMILY FOUNDATION36-4386801 | CHICAGO, IL | $10K | Cash | RESEARCH |
| Total | $1M | |||
STANFORD UNIVERSITY SCHOOL OF MEDICINE
STANFORD, CA
$370K
BALTIMORE, MD
$365K
NEW YORK, NY
$100K
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA - LOS ANGELES
LOS ANGELES, CA
$100K
NEW HAVEN, CT
$100K
LYON FAMILY FOUNDATION
CHICAGO, IL
$10K
Source: USAspending.gov
Federal award data is temporarily unavailable.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
Federal audit data is temporarily unavailable.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $7.8M | $6.9M | $7.6M | $19.5M | $16.9M |
| 2023IRS e-File | $5.5M | $4.9M | $6.6M | $18.1M | $16.3M |
| 2022 | $9.8M | $9.6M | $4.7M | $16.6M | $15.1M |
| 2021 | $4.9M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Michael L Weamer | Pres/ceo | 35 | $474.6K | $0 | $28.1K | $502.7K |
| Inderjeet Kaur Cpa | Chief Financial Officer | 35 | $168K | $0 | $18.2K | $186.2K |
| Judith Gibaldi | Chief Operations Officer | 35 | $125.2K | $0 | $28.1K | $153.3K |
| Bert Medina | Chair | 8 | $0 | $0 | $0 | $0 |
| Cory A Eaves | Immediate Past Chair | 1 | $0 | $0 | $0 | $0 |
| Caryn E Kauffman Cpa | Treasurer | 3 | $0 | $0 | $0 | $0 |
| Patricia Mccabe Estrada | Secretary | 1 | $0 | $0 | $0 | $0 |
Michael L Weamer
Pres/ceo
$502.7K
Hrs/Wk
35
Compensation
$474.6K
Related Orgs
$0
Other
$28.1K
Inderjeet Kaur Cpa
Chief Financial Officer
$186.2K
Hrs/Wk
35
Compensation
$168K
Related Orgs
$0
Other
$18.2K
Judith Gibaldi
Chief Operations Officer
$153.3K
Hrs/Wk
35
Compensation
$125.2K
Related Orgs
$0
Other
$28.1K
Bert Medina
Chair
$0
Hrs/Wk
8
Compensation
$0
Related Orgs
$0
Other
$0
Cory A Eaves
Immediate Past Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Caryn E Kauffman Cpa
Treasurer
$0
Hrs/Wk
3
Compensation
$0
Related Orgs
$0
Other
$0
Patricia Mccabe Estrada
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Helaine Baruch | Chief Development Officer | 35 | $250.1K | $0 | $18.2K | $268.3K |
| Josephine Grima | Chief Science Officer | 35 | $210.3K | $0 | $18.2K | $228.5K |
| Eileen Novins | Chief Program Officer | 35 | $194.5K | $0 |
Helaine Baruch
Chief Development Officer
$268.3K
Hrs/Wk
35
Compensation
$250.1K
Related Orgs
$0
Other
$18.2K
Josephine Grima
Chief Science Officer
$228.5K
Hrs/Wk
35
Compensation
$210.3K
Related Orgs
$0
Other
$18.2K
Eileen Novins
Chief Program Officer
$212.6K
Hrs/Wk
35
Compensation
$194.5K
Related Orgs
$0
Other
$18.2K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Alan Braverman Md | Director | 1 | $0 | $0 | $0 | $0 |
| Andrew Toy | Director | 1 | $0 | $0 | $0 | $0 |
| Anthony Yasick Md | Director | 1 | $0 | $0 | $0 | $0 |
| Brandy Banks Hotchkiss | Director | 1 | $0 | $0 | $0 | $0 |
| Bryan Maher | Director | 1 | $0 | $0 | $0 | $0 |
| David Warren | Director |
Alan Braverman Md
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Andrew Toy
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Anthony Yasick Md
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $4.7M |
| $4.9M |
| $12.5M |
| $10.8M |
| 2020 | $3.9M | $3.5M | $6.2M | $11.1M | $9.1M |
| 2019 | $4.7M | $4.4M | $5.5M | $12.1M | $11.6M |
| 2018 | $4.4M | $4M | $5.4M | $12.6M | $12.2M |
| 2017 | $8.3M | $8.2M | $4.5M | $13.5M | $13.1M |
| 2016 | $3.5M | $3.4M | $4.6M | $9.3M | $9M |
| 2015 | $3.5M | $3.4M | $4.4M | $10.6M | $10.1M |
| 2014 | $3M | $2.8M | $4M | $11.5M | $11M |
| 2013 | $2.9M | $2.6M | $3.8M | $12.5M | $11.9M |
| 2012 | $7.6M | $7.2M | $4M | $13.4M | $13M |
| 2022 | 990 | Data |
| 2021 | 990 | Data | PDF not yet published by IRS |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | — |
| 2010 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| $18.2K |
| $212.6K |
| Kimberly K Huddleston | Vp. Of Development | 35 | $138K | $0 | $326 | $138.3K |
| Lauren E May | Director Of Research | 35 | $131.7K | $0 | $326 | $132.1K |
Kimberly K Huddleston
Vp. Of Development
$138.3K
Hrs/Wk
35
Compensation
$138K
Related Orgs
$0
Other
$326
Lauren E May
Director Of Research
$132.1K
Hrs/Wk
35
Compensation
$131.7K
Related Orgs
$0
Other
$326
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| Dawn Reiner | Director | 1 | $0 | $0 | $0 | $0 |
| Duke Cameron Md | Director | 1 | $0 | $0 | $0 | $0 |
| Gary Kauffman | Director | 1 | $0 | $0 | $0 | $0 |
| Gil Bashe | Director | 1 | $0 | $0 | $0 | $0 |
| James Prutow | Director | 1 | $0 | $0 | $0 | $0 |
| Jeffrey C Lesage | Director | 1 | $0 | $0 | $0 | $0 |
| Jerry L Lerman | Director | 1 | $0 | $0 | $0 | $0 |
| Jess Milburn | Director | 1 | $0 | $0 | $0 | $0 |
| Joaquin Ramos Jr | Director | 1 | $0 | $0 | $0 | $0 |
| Jon R Tullis | Director | 1 | $0 | $0 | $0 | $0 |
| Juan Bowen Md | Director | 1 | $0 | $0 | $0 | $0 |
| Ray Chevallier | Director | 1 | $0 | $0 | $0 | $0 |
| Scott D Avitabile Esq | Director | 1 | $0 | $0 | $0 | $0 |
| Sinclair Li | Director | 1 | $0 | $0 | $0 | $0 |
Brandy Banks Hotchkiss
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Bryan Maher
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
David Warren
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Dawn Reiner
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Duke Cameron Md
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Gary Kauffman
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Gil Bashe
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
James Prutow
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jeffrey C Lesage
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jerry L Lerman
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jess Milburn
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Joaquin Ramos Jr
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jon R Tullis
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Juan Bowen Md
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Ray Chevallier
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Scott D Avitabile Esq
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sinclair Li
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0