Loading organization details...
Loading organization details...
TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2023
Total Revenue
▼$5.1M
Program Spending
80%
of total expenses go to program services
Total Contributions
$5.2M
Total Expenses
▼$4.8M
Total Assets
$8.7M
Total Liabilities
▼$1.1M
Net Assets
$7.6M
Officer Compensation
→$282.2K
Other Salaries
$1.1M
Investment Income
-$82.1K
Fundraising
▼$86.4K
Tax Year 2023 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $562.3K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
NORTH TEXAS COMMUNITY FOUNDATION75-2267767 | FORTH WORTH, TX | $180K | Cash | RAINWATER PRIME OF LIFE FUND - CURE PILLAR OF OUR MISSION |
MAYO CLINIC JACKSONVILLE59-3337028 | JACKSONVILLE, FL | $100K | Cash | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION |
UCLA95-6006143 | LOS ANGELES, CA | $100K | Cash | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION |
SJO RESEARCH & CONSULTING45-1290156 | PHOENIXVILLE, PA | $63K | Cash | PATIENT JOURNEY PROJECT - CONSCIOUSNESS PILLAR OF OUR MISSION |
OREGON HEALTH AND SCIENCE UNIVERSITY93-1176109 | PORTLAND, OR | $50K | Cash | FY24 CENTER OF CARE CARES GRANT |
BAYLOR COLLEGE OF MEDICINE74-1613878 | HOUSTON, TX | $30K | Cash | FY24 CUREPSP CENTER OF CARE CARES GRANT |
CLEVELAND CLINIC CLEVELAND34-0714585 | CLEVELAND, OH | $29.3K | Cash | FY24 CENTER OF CARE CARES GRANT |
VIRGINIA COMMONWEALTH UNIVERSITY54-6001758 | RISHMOND, VA | $10K | Cash | FY24 CENTER OF CARE ANNUAL AWARD - VCU |
| Total | $562.3K | |||
NORTH TEXAS COMMUNITY FOUNDATION
FORTH WORTH, TX
$180K
JACKSONVILLE, FL
$100K
UCLA
LOS ANGELES, CA
$100K
SJO RESEARCH & CONSULTING
PHOENIXVILLE, PA
$63K
OREGON HEALTH AND SCIENCE UNIVERSITY
PORTLAND, OR
$50K
BAYLOR COLLEGE OF MEDICINE
HOUSTON, TX
$30K
CLEVELAND, OH
$29.3K
VIRGINIA COMMONWEALTH UNIVERSITY
RISHMOND, VA
$10K
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$10K
Awards Found
1
| Awarding Agency | Description | Amount | Fiscal Year | Period | Link |
|---|---|---|---|---|---|
| Department of Health and Human Services | PSP & CBD INTERNATIONAL RESEARCH SYMPOSIUM 2018 | $10K | FY2018 | Sep 2018 – Aug 2019 | Open → |
Department of Health and Human Services
$10K
PSP & CBD INTERNATIONAL RESEARCH SYMPOSIUM 2018
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023IRS e-File | $5.1M | $5.2M | $4.8M | $8.7M | $7.6M |
| 2022IRS e-File | $3.3M | $3.2M | $4.3M | $7.8M | $6.4M |
| 2021 | $6.3M | $6.3M | $3.5M | $8.4M | $7.5M |
| 2020 | $3.5M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2023)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Kristophe J Diaz | Exe Dir And Chief Science Officer | 40 | $234K | $0 | $17.6K | $251.6K |
| Jack Phillips | Chair (beginning 1/24) | 21 | $0 | $0 | $0 | $0 |
| William Mcfarland | Chair (through 1/24) | 2 | $0 | $0 | $0 | $0 |
| Amy Branch | Vice Chair | 10 | $0 | $0 | $0 | $0 |
| Justin Shea | Treasurer | 2 | $0 | $0 | $0 | $0 |
| Lawrence Levien | Secretary | 1 | $0 | $0 | $0 | $0 |
| Lawrence Golbe | Chair - Scientific Advisory Board | 6 | $0 | $0 | $0 | $0 |
Kristophe J Diaz
Exe Dir And Chief Science Officer
$251.6K
Hrs/Wk
40
Compensation
$234K
Related Orgs
$0
Other
$17.6K
Jack Phillips
Chair (beginning 1/24)
$0
Hrs/Wk
21
Compensation
$0
Related Orgs
$0
Other
$0
William Mcfarland
Chair (through 1/24)
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Amy Branch
Vice Chair
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Justin Shea
Treasurer
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Lawrence Levien
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Lawrence Golbe
Chair - Scientific Advisory Board
$0
Hrs/Wk
6
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Richard T Spain Iv | Director, Development | 40 | $131.2K | $0 | $17.5K | $148.7K |
| Jaclyn C Zendrian | Vp-events | 40 | $126.2K | $0 | $18.3K | $144.5K |
| Jennifer L Brummet | Assoc. Dir, Scientific Affairs And Partner | 40 | $125.7K | $0 | $17.4K | $143.1K |
| Jessica Shurer | Dir. Clinical Affairs And Advocacy | 40 | $104.8K | $0 | $20.2K | $124.9K |
Richard T Spain Iv
Director, Development
$148.7K
Hrs/Wk
40
Compensation
$131.2K
Related Orgs
$0
Other
$17.5K
Jaclyn C Zendrian
Vp-events
$144.5K
Hrs/Wk
40
Compensation
$126.2K
Related Orgs
$0
Other
$18.3K
Jennifer L Brummet
Assoc. Dir, Scientific Affairs And Partner
$143.1K
Hrs/Wk
40
Compensation
$125.7K
Related Orgs
$0
Other
$17.4K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Alexander Pantelyat | Director | 2 | $0 | $0 | $0 | $0 |
| Ileen Mcfarland | Director | 35 | $0 | $0 | $0 | $0 |
| James Mcclellan | Director | 1 | $0 | $0 | $0 | $0 |
| Louis Foxwell | Director | 3 | $0 | $0 | $0 | $0 |
| Maggie Orseth | Director | 1 | $0 | $0 | $0 | $0 |
| Mana Bhatt Sanghvi | Director |
Alexander Pantelyat
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Ileen Mcfarland
Director
$0
Hrs/Wk
35
Compensation
$0
Related Orgs
$0
Other
$0
James Mcclellan
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $3.4M |
| $2.6M |
| $5.4M |
| $4.6M |
| 2019 | $3.1M | $2.8M | $2.4M | $4.3M | $3.6M |
| 2018 | $2.8M | $2.5M | $2.6M | $3.7M | $2.9M |
| 2017 | $2.7M | $2.6M | $2.4M | $3.1M | $2.6M |
| 2016 | $3.2M | $3.1M | $3.2M | $3.2M | $2.2M |
| 2015 | $2.7M | $2.5M | $2.5M | $3.4M | $2.2M |
| 2014 | $3.3M | $3.2M | $3.2M | $3.3M | $1.9M |
| 2013 | $1.8M | $1.6M | $2.1M | $2.2M | $1.7M |
| 2012 | $2.4M | $2.3M | $1.7M | $2.9M | $2M |
| 2011 | $1.4M | $1.2M | $1.7M | $2.6M | $1.3M |
| 2021 | 990 | Data | PDF not yet published by IRS |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
Jessica Shurer
Dir. Clinical Affairs And Advocacy
$124.9K
Hrs/Wk
40
Compensation
$104.8K
Related Orgs
$0
Other
$20.2K
| 2 |
| $0 |
| $0 |
| $0 |
| $0 |
| Nadine Tatton | Director | 1 | $0 | $0 | $0 | $0 |
| Paul Freeman | Director | 2.5 | $0 | $0 | $0 | $0 |
Louis Foxwell
Director
$0
Hrs/Wk
3
Compensation
$0
Related Orgs
$0
Other
$0
Maggie Orseth
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Mana Bhatt Sanghvi
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Nadine Tatton
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Paul Freeman
Director
$0
Hrs/Wk
2.5
Compensation
$0
Related Orgs
$0
Other
$0