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Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$1.9M
Program Spending
80%
of total expenses go to program services
Total Contributions
$1.4M
Total Expenses
▼$2M
Total Assets
$714K
Total Liabilities
▼$80.9K
Net Assets
$633.2K
Officer Compensation
→$418.2K
Other Salaries
$602.1K
Investment Income
$2,722
Fundraising
▼N/A
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$14.1M
Awards Found
6
| Awarding Agency | Description | Amount | Fiscal Year | Period |
|---|---|---|---|---|
| Department of Health and Human Services | SPINA BIFIDA ASSOC- NAT'L SPINA BIFIDA INITIATI: PREVENT, RESOU & QUALITY OF LIFE | $6.4M | FY2007 | Sep 2007 – Aug 2013 |
| Department of Health and Human Services | THE CONTINUED DEVELOPMENT AND IMPLEMENTATION OF THE SPINA BIFIDA COLLABORATIVE CARE NETWORK | $4.1M | FY2019 | Sep 2019 – Aug 2026 |
| Department of Health and Human Services | COMP A-DEVELOPING THE SPINA BIFIDA COLLABORATIVE CARE NETWORK | $3.1M | FY2014 | Sep 2014 – Aug 2019 |
| Department of Health and Human Services | NATIONAL FOLIC ACID PROGRAM | $490K | FY2007 | Sep 2007 – Sep 2011 |
| Department of Health and Human Services | FIRST WORLD CONGRESS ON SPINA BIFIDA RESEARCH AND CARE | $50K | FY2009 | Jan 2009 – Jan 2010 |
| Department of Health and Human Services | FIRST WORLD CONGRESS ON SPINA BIFIDA RESEARCH AND CARE | $10K | FY2009 | Mar 2009 – Jan 2010 |
Department of Health and Human Services
$6.4M
SPINA BIFIDA ASSOC- NAT'L SPINA BIFIDA INITIATI: PREVENT, RESOU & QUALITY OF LIFE
Department of Health and Human Services
$4.1M
THE CONTINUED DEVELOPMENT AND IMPLEMENTATION OF THE SPINA BIFIDA COLLABORATIVE CARE NETWORK
Department of Health and Human Services
$3.1M
COMP A-DEVELOPING THE SPINA BIFIDA COLLABORATIVE CARE NETWORK
Department of Health and Human Services
$490K
NATIONAL FOLIC ACID PROGRAM
Department of Health and Human Services
$50K
FIRST WORLD CONGRESS ON SPINA BIFIDA RESEARCH AND CARE
Department of Health and Human Services
$10K
FIRST WORLD CONGRESS ON SPINA BIFIDA RESEARCH AND CARE
Source: Federal Audit Clearinghouse (fac.gov)
Total Audits
2
Clean Audits
0
Material Weakness
Yes
Noncompliance Issues
No
| Year | Status | Financial Report | Federal Expenditure | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2023 | Material Weakness | Unmodified (Clean) | $921.7K | No | 2024-09-28 |
| 2022 | Material Weakness | Unmodified (Clean) | $890.7K | No | 2023-09-28 |
Financial Report
Unmodified (Clean)
Federal Expenditure
$921.7K
Financial Report
Unmodified (Clean)
Federal Expenditure
$890.7K
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $1.9M | $1.4M | $2M | $714K | $633.2K |
| 2023 | $2.8M | $2.1M | $3.2M | $1M | $704K |
| 2022 | $2.2M | $2.1M | $2.3M | $1.4M | $1M |
| 2021 | $2.3M | $2.1M | $2M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Sara Struwe | President And CEO | 37.5 | $139.5K | $0 | $24.3K | $163.7K |
| Glenrae Brown | Chief Financial Officer | 37.5 | $114K | $0 | $24.3K | $138.3K |
| Michael Wood | Chief Operating Officer | 37.5 | $95.4K | $0 | $19.9K | $115.3K |
| Anshul Varma | Secretary/treasurer | 2 | $0 | $0 | $0 | $0 |
| Nancy Gore | Chair | 5 | $0 | $0 | $0 | $0 |
| Maria Bournias Esq Cpa | Immediate Past Chair | 2 | $0 | $0 | $0 | $0 |
| Eric Tobin | Chair-elect | 2 | $0 | $0 | $0 | $0 |
Sara Struwe
President And CEO
$163.7K
Hrs/Wk
37.5
Compensation
$139.5K
Related Orgs
$0
Other
$24.3K
Glenrae Brown
Chief Financial Officer
$138.3K
Hrs/Wk
37.5
Compensation
$114K
Related Orgs
$0
Other
$24.3K
Michael Wood
Chief Operating Officer
$115.3K
Hrs/Wk
37.5
Compensation
$95.4K
Related Orgs
$0
Other
$19.9K
Anshul Varma
Secretary/treasurer
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Nancy Gore
Chair
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Maria Bournias Esq Cpa
Immediate Past Chair
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Eric Tobin
Chair-elect
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Bryan Vodicka | Director | 2 | $0 | $0 | $0 | $0 |
| Chase Phillips | Director | 2 | $0 | $0 | $0 | $0 |
| Dawne Widener-Burrows | Director | 2 | $0 | $0 | $0 | $0 |
| Ellen Fremion Md Faap Facp | Director | 2 | $0 | $0 | $0 | $0 |
| James Armijo | Director | 2 | $0 | $0 | $0 | $0 |
| John Wiener Md | Director |
Bryan Vodicka
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Chase Phillips
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Dawne Widener-Burrows
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $1.4M |
| $1.2M |
| 2020 | $1.5M | $1.5M | $2.1M | $1.4M | $910.1K |
| 2019 | $1.9M | $1.7M | $2.2M | $1.7M | $1.4M |
| 2018 | $3M | $2.9M | $1.8M | $2M | $1.8M |
| 2017 | $1.9M | $1.5M | $1.8M | $859.5K | $617.4K |
| 2016 | $1.9M | $1.5M | $2.1M | $861.7K | $567.7K |
| 2015 | $1.7M | $1.5M | $2.1M | $1M | $765.9K |
| 2014 | $1.8M | $1.5M | $1.9M | $1.5M | $1.2M |
| 2013 | $2M | $1.8M | $2.1M | $1.6M | $1.5M |
| 2012 | $3.1M | $2.4M | $3.3M | $1.8M | $1.6M |
| 2011 | $3.4M | $3M | $3.1M | $2.2M | $1.9M |
PDF not yet published by IRSView Filing → |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data | PDF not yet published by IRS |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2 |
| $0 |
| $0 |
| $0 |
| $0 |
| Kathryn Ann Navarette Smith Rn Mn | Director | 2 | $0 | $0 | $0 | $0 |
| Marie Thoming Pe | Member At Large | 2 | $0 | $0 | $0 | $0 |
| Melissa Wiegel | Director | 2 | $0 | $0 | $0 | $0 |
| Robin M Bowman Md | Director | 2 | $0 | $0 | $0 | $0 |
| Sheliah Roy | Director | 2 | $0 | $0 | $0 | $0 |
| Tracy Dinunzio | Director | 2 | $0 | $0 | $0 | $0 |
Ellen Fremion Md Faap Facp
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
James Armijo
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
John Wiener Md
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Kathryn Ann Navarette Smith Rn Mn
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Marie Thoming Pe
Member At Large
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Melissa Wiegel
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Robin M Bowman Md
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Sheliah Roy
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Tracy Dinunzio
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0