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Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$18.6M
Program Spending
79%
of total expenses go to program services
Total Contributions
$11.2M
Total Expenses
▼$38.2M
Total Assets
$93.3M
Total Liabilities
▼$37.5M
Net Assets
$55.7M
Officer Compensation
→$2.5M
Other Salaries
$6.3M
Investment Income
$4.9M
Fundraising
▼$692.4K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $18.6M | $11.2M | $38.2M | $93.3M | $55.7M |
| 2023 | $50.9M | $41M | $35.4M | $111.9M | $75.3M |
| 2022 | $22.7M | $18.4M | $32.4M | $98.9M | $63.5M |
| 2021 | $23.8M | $18.9M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Albert Roy | CEO And President | 40 | $427.4K | $0 | $92.7K | $520.1K |
| Teodora Staeva | Chief Scientific Officer | 40 | $325.5K | $0 | $81.6K | $407K |
| Stacie Bell Phd | Chief Clinical Research Officer | 40 | $301.4K | $0 | $50.7K | $352.1K |
| Debra Rose | Chief Financal Officer | 40 | $259.4K | $0 | $84.6K | $344K |
| Andrea O'Neill | Vp, Development | 40 | $248.3K | $0 | $44.6K | $292.9K |
| Ira Akselrad | Chair | 1 | $0 | $0 | $0 | $0 |
| Joseph Mauriello | Treasurer | 1 | $0 | $0 | $0 | $0 |
| Anna Fisch | Secretary | 1 | $0 | $0 | $0 | $0 |
Albert Roy
CEO And President
$520.1K
Hrs/Wk
40
Compensation
$427.4K
Related Orgs
$0
Other
$92.7K
Teodora Staeva
Chief Scientific Officer
$407K
Hrs/Wk
40
Compensation
$325.5K
Related Orgs
$0
Other
$81.6K
Stacie Bell Phd
Chief Clinical Research Officer
$352.1K
Hrs/Wk
40
Compensation
$301.4K
Related Orgs
$0
Other
$50.7K
Debra Rose
Chief Financal Officer
$344K
Hrs/Wk
40
Compensation
$259.4K
Related Orgs
$0
Other
$84.6K
Andrea O'Neill
Vp, Development
$292.9K
Hrs/Wk
40
Compensation
$248.3K
Related Orgs
$0
Other
$44.6K
Ira Akselrad
Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Joseph Mauriello
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Anna Fisch
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Luke Easley | VP Of Hr & Administration | 40 | $233.9K | $0 | $42.7K | $276.6K |
| Devon Kelly | Lupus Nexus Director | 40 | $226.5K | $0 | $46.4K | $272.9K |
| Penelope Mitchell | VP Of Communications | 40 | $210.7K | $0 | $47.3K | $258K |
| Jennifer Meriwether | Clin Ops Director, Lt | 40 | $199.1K | $0 | $39.8K | $238.9K |
| Dorey Neilinger | Senior Director Of Philanthropy | 40 | $189K | $0 | $47.6K | $236.7K |
Luke Easley
VP Of Hr & Administration
$276.6K
Hrs/Wk
40
Compensation
$233.9K
Related Orgs
$0
Other
$42.7K
Devon Kelly
Lupus Nexus Director
$272.9K
Hrs/Wk
40
Compensation
$226.5K
Related Orgs
$0
Other
$46.4K
Penelope Mitchell
VP Of Communications
$258K
Hrs/Wk
40
Compensation
$210.7K
Related Orgs
$0
Other
$47.3K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Andrew C Chan | Director | 1 | $0 | $0 | $0 | $0 |
| Bishop Rudy V Carlton | Director | 1 | $0 | $0 | $0 | $0 |
| Daniel J Wallace | Director | 1 | $0 | $0 | $0 | $0 |
| Daniel Lavecchia | Director | 1 | $0 | $0 | $0 | $0 |
| David Kies | Director | 1 | $0 | $0 | $0 | $0 |
| Gary Koretsky | Director |
Andrew C Chan
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Bishop Rudy V Carlton
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Daniel J Wallace
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Individuals who previously served as officers or key employees.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Kenneth M Faber | Former CEO & President | 40 | $375K | $0 | $0 | $375K |
Kenneth M Faber
Former CEO & President
$375K
Hrs/Wk
40
Compensation
$375K
Related Orgs
$0
Other
$0
| $26.8M |
| $110.9M |
| $69.5M |
| 2020 | $44.8M | $41.5M | $34.3M | $103.4M | $61.6M |
| 2019 | $21.1M | $17.7M | $26.8M | $71.4M | $44.8M |
| 2018 | $19M | $15.4M | $22.9M | $65.1M | $41.3M |
| 2017 | $25.7M | $23.7M | $28.3M | $77M | $50.5M |
| 2016 | $18.3M | $19.1M | $27.1M | $67.6M | $45.2M |
| 2015 | $18.8M | $15.3M | $15.2M | $63.1M | $48.2M |
| 2014 | $14.7M | $12.5M | $13.7M | $64.2M | $49.5M |
| 2013 | $11.6M | $8.2M | $12.1M | $59.9M | $47M |
| 2012 | $10.3M | $8.9M | $12.9M | $54M | $41.7M |
| 2011 | $11.7M | $9.5M | $11.5M | $49.3M | $40.9M |
| 2021 | 990 | DataIRS e-File |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990-PF | — |
| 2004 | 990-PF | — |
| 2003 | 990-PF | — |
| 2002 | 990-PF | — |
| 2001 | 990 | — |
| Hoang Nguyen |
| Director Of Scientific Partnership |
| 40 |
| $167.7K |
| $0 |
| $39.6K |
| $207.3K |
| Jonathan Marks | Director Of Corporate Development | 40 | $147.4K | $0 | $52.7K | $200.1K |
Jennifer Meriwether
Clin Ops Director, Lt
$238.9K
Hrs/Wk
40
Compensation
$199.1K
Related Orgs
$0
Other
$39.8K
Dorey Neilinger
Senior Director Of Philanthropy
$236.7K
Hrs/Wk
40
Compensation
$189K
Related Orgs
$0
Other
$47.6K
Hoang Nguyen
Director Of Scientific Partnership
$207.3K
Hrs/Wk
40
Compensation
$167.7K
Related Orgs
$0
Other
$39.6K
Jonathan Marks
Director Of Corporate Development
$200.1K
Hrs/Wk
40
Compensation
$147.4K
Related Orgs
$0
Other
$52.7K
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| James Andrew | Director | 1 | $0 | $0 | $0 | $0 |
| Jennie Descherer | Director | 1 | $0 | $0 | $0 | $0 |
| Jennifer Dakin | Director | 1 | $0 | $0 | $0 | $0 |
| Joe Germanotta | Director | 1 | $0 | $0 | $0 | $0 |
| Julius Williams | Director | 1 | $0 | $0 | $0 | $0 |
| Katey Driscoll | Director | 1 | $0 | $0 | $0 | $0 |
| Moti Ferder | Director | 1 | $0 | $0 | $0 | $0 |
| Nadeem Meghji | Director | 1 | $0 | $0 | $0 | $0 |
| Nidhi Patel | Director | 1 | $0 | $0 | $0 | $0 |
| Robert Seder Md | Director | 1 | $0 | $0 | $0 | $0 |
| Spencer Zwick | Director | 1 | $0 | $0 | $0 | $0 |
| Veronica Vargas Lupo | Director | 1 | $0 | $0 | $0 | $0 |
| William J Mulvihill | Director | 1 | $0 | $0 | $0 | $0 |
| William Wolfe | Director | 1 | $0 | $0 | $0 | $0 |
| Willie Colon | Director | 1 | $0 | $0 | $0 | $0 |
| Xavier Gross | Director | 1 | $0 | $0 | $0 | $0 |
Daniel Lavecchia
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
David Kies
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Gary Koretsky
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
James Andrew
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jennie Descherer
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jennifer Dakin
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Joe Germanotta
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Julius Williams
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Katey Driscoll
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Moti Ferder
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Nadeem Meghji
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Nidhi Patel
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Robert Seder Md
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Spencer Zwick
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Veronica Vargas Lupo
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
William J Mulvihill
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
William Wolfe
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Willie Colon
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Xavier Gross
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0