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LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
Source: IRS Form 990 (Tax Year 2025)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$2.7M
Program Spending
79%
of total expenses go to program services
Total Contributions
$2.8M
Total Expenses
▼$3.1M
Total Assets
$4.3M
Total Liabilities
▼$531K
Net Assets
$3.8M
Officer Compensation
→$1.4M
Other Salaries
$0
Investment Income
$102.7K
Fundraising
▼N/A
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $198K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
ALS NETWORK95-4163338 | WOODLAND HILLS, CA | $150K | Cash | RESEARCH |
OHSU93-1176109 | PORTLAND, OR | $30K | Cash | RESEARCH |
PROVIDENCE ST VINCENT93-0575982 | PORTLAND, OR | $18K | Cash | BRAIN/SPINE INSTITUTE |
| Total | $198K | |||
ALS NETWORK
WOODLAND HILLS, CA
$150K
OHSU
PORTLAND, OR
$30K
PROVIDENCE ST VINCENT
PORTLAND, OR
$18K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2025 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $2.7M | $2.8M | $3.1M | $4.3M | $3.8M |
| 2023IRS e-File | $2.4M | $2.2M | $2.9M | $4.5M | $3.7M |
| 2022 | $4.4M | $4.4M | $3M | $3.9M | $3.7M |
| 2021 | $2.5M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2025 | 990 | IRS e-File | |
| 2024 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | IRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2025)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Lance Christian | Past Exec. Dir. | 40 | $185.4K | $0 | $22.5K | $207.9K |
| Cassy Adams | Executive Dir. | 40 | $114.9K | $0 | $18.2K | $133K |
| Jason Drucker | President | 2 | $0 | $0 | $0 | $0 |
| Arturo Gonzalez | Vice President | 2 | $0 | $0 | $0 | $0 |
| Doug Mcclure | Secretary | 2 | $0 | $0 | $0 | $0 |
| Amy Frazey | Past President | 2 | $0 | $0 | $0 | $0 |
| Katherine Hart | Treasurer | 2 | $0 | $0 | $0 | $0 |
Lance Christian
Past Exec. Dir.
$207.9K
Hrs/Wk
40
Compensation
$185.4K
Related Orgs
$0
Other
$22.5K
Cassy Adams
Executive Dir.
$133K
Hrs/Wk
40
Compensation
$114.9K
Related Orgs
$0
Other
$18.2K
Jason Drucker
President
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Arturo Gonzalez
Vice President
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Doug Mcclure
Secretary
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Amy Frazey
Past President
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Katherine Hart
Treasurer
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Ian Mchone | Director | 2 | $0 | $0 | $0 | $0 |
| Jerry Catlin | Director | 2 | $0 | $0 | $0 | $0 |
| Jim Lobdell | Director | 2 | $0 | $0 | $0 | $0 |
| Katie Curtis | Director | 2 | $0 | $0 | $0 | $0 |
| Ken Fink | Director | 2 | $0 | $0 | $0 | $0 |
| Kim Goslin | Director | 2 |
Ian Mchone
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jerry Catlin
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jim Lobdell
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $2.5M |
| $2M |
| $2.6M |
| $2.3M |
| 2020 | $2.3M | $2.4M | $2.1M | $2M | $1.8M |
| 2019 | $1.9M | $2M | $1.9M | $1.8M | $1.7M |
| 2018 | $1.7M | $1.7M | $1.7M | $1.7M | $1.6M |
| 2017 | $1.7M | $1.4M | $1.8M | $1.8M | $1.6M |
| 2016 | $1.6M | $1.3M | $1.8M | $2M | $1.8M |
| 2015 | $2.3M | $2.1M | $1.7M | $2.1M | $2M |
| 2014 | $1.5M | $1.3M | $1.3M | $1.5M | $1.3M |
| 2013 | $1.5M | $1.2M | $1.1M | $1.3M | $1.2M |
| 2012 | $1.4M | $1.1M | $941.3K | $998.1K | $856.5K |
| 2022 | 990 | Data |
| 2021 | 990 | Data | PDF not yet published by IRS |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | — |
| 2010 | 990 | — |
| 2009 | 990-EZ | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| $0 |
| $0 |
| $0 |
| $0 |
| Lou Libby | Director | 2 | $0 | $0 | $0 | $0 |
| Mark Doar | Director | 2 | $0 | $0 | $0 | $0 |
| Mark Duin | Director | 2 | $0 | $0 | $0 | $0 |
| Mark Turnbull | Director | 2 | $0 | $0 | $0 | $0 |
| Rocky Dallum | Director | 2 | $0 | $0 | $0 | $0 |
| Tom Holt | Director | 2 | $0 | $0 | $0 | $0 |
| Whitney Parnell | Director | 2 | $0 | $0 | $0 | $0 |
Katie Curtis
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Ken Fink
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Kim Goslin
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Lou Libby
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Mark Doar
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Mark Duin
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Mark Turnbull
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Rocky Dallum
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Tom Holt
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Whitney Parnell
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0