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FRAXAs mission is to find effective treatments and ultimately a cure for Fragile X syndrome.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$2.3M
Program Spending
91%
of total expenses go to program services
Total Contributions
$2.1M
Total Expenses
▼$1.4M
Total Assets
$5M
Total Liabilities
▼$12.8K
Net Assets
$5M
Officer Compensation
→$304.5K
Other Salaries
$59.9K
Investment Income
$122.6K
Fundraising
▼$87.5K
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $748.2K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
Yale School of Medicine | New Haven, CT | $100K | Cash | Research |
Umass medical | Worcester, MA | $100K | Cash | Research |
Massachusetts General Hospital | Boston, MA | $50K | Cash | Research |
Massachusetts Institute of Technology | Cambridge, MA | $50K | Cash | Research |
University of Rochester16-0743209 | Rochester, NY | $50K | Cash | Research |
University of California at Irvine95-2226406 | Irvine, CA | $50K | Cash | Research |
University of Wisconsin-Madison39-6006492 | Milwaukee, WI | $50K | Cash | Research |
Cincinnati Children's Hospital31-0833936 | Cincinnati, OH | $50K | Cash | Research |
| Chicago, IL | $50K | Cash | Research | |
Seattle Children's Research Institute91-0564748 | Seattle, WA | $50K | Cash | Research |
Cold Spring Harbor Laboratory11-2013303 | Cold Spring Harbor, NY | $50K | Cash | Research |
Children's Hospital of Philadelphia23-2237932 | Philadelphia, PA | $50K | Cash | Research |
National Institutes of health52-0858115 | Bethesda, MD | $48.2K | Cash | Research |
| Total | $748.2K | |||
Yale School of Medicine
New Haven, CT
$100K
Umass medical
Worcester, MA
$100K
Massachusetts General Hospital
Boston, MA
$50K
Massachusetts Institute of Technology
Cambridge, MA
$50K
Rochester, NY
$50K
Irvine, CA
$50K
Milwaukee, WI
$50K
Cincinnati, OH
$50K
Chicago, IL
$50K
Seattle, WA
$50K
Cold Spring Harbor, NY
$50K
Philadelphia, PA
$50K
Bethesda, MD
$48.2K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $2.3M | $2.1M | $1.4M | $5M | $5M |
| 2023IRS e-File | $2M | $1.9M | $1.8M | $4M | $3.9M |
| 2022 | $2M | $1.7M | $1.9M | $3.5M | $3.5M |
| 2021 | $2.1M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Katherine Clapp | President | 40 | $150.4K | $0 | $6,698 | $157.1K |
| Michael Tranfaglia | Medical Director/treasurer/secretary | 40 | $139.2K | $0 | $8,141 | $147.4K |
| Deborah Stevenson | Board Chair | 10 | $0 | $0 | $0 | $0 |
Katherine Clapp
President
$157.1K
Hrs/Wk
40
Compensation
$150.4K
Related Orgs
$0
Other
$6,698
Michael Tranfaglia
Medical Director/treasurer/secretary
$147.4K
Hrs/Wk
40
Compensation
$139.2K
Related Orgs
$0
Other
$8,141
Deborah Stevenson
Board Chair
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Andres Centellas | Director | 10 | $0 | $0 | $0 | $0 |
| Dean Clark | Director | 10 | $0 | $0 | $0 | $0 |
| James Vershbow | Director | 10 | $0 | $0 | $0 | $0 |
| Jessica Haugen | Director | 10 | $0 | $0 | $0 | $0 |
| Leslie Eddy | Director | 10 | $0 | $0 | $0 | $0 |
| Ronald M Watkins Jr | Director |
Andres Centellas
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Dean Clark
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
James Vershbow
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
| $2M |
| $1.4M |
| $3.9M |
| $3.9M |
| 2020 | $1.4M | $1.4M | $885.9K | $3.2M | $3.1M |
| 2019 | $1.4M | $1.3M | $1.3M | $2.5M | $2.5M |
| 2018 | $1.8M | $1.8M | $1.5M | $2.4M | $2.2M |
| 2017 | $1.7M | $1.6M | $1.5M | $2.2M | $2M |
| 2016 | $1.3M | $1.2M | $1.6M | $1.9M | $1.8M |
| 2015 | $1.3M | $1.2M | $1.4M | $2.2M | $2.2M |
| 2014 | $1.3M | $1.2M | $1M | $2.4M | $2.4M |
| 2013 | $1.2M | $771.3K | $1.9M | $2M | $2M |
| 2012 | $1.6M | $1.3M | $1.9M | $2.7M | $2.5M |
| 2011 | $1.5M | $1.1M | $1.8M | $2.8M | $2.7M |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 10 |
| $0 |
| $0 |
| $0 |
| $0 |
| Sasa Zorovic | Director | 10 | $0 | $0 | $0 | $0 |
| Theodore Coutilish | Director | 10 | $0 | $0 | $0 | $0 |
Jessica Haugen
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Leslie Eddy
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Ronald M Watkins Jr
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Sasa Zorovic
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Theodore Coutilish
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0