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Research and drug development for the 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$3.5M
Program Spending
86%
of total expenses go to program services
Total Contributions
$3.3M
Total Expenses
▼$3M
Total Assets
$6M
Total Liabilities
▼$632.7K
Net Assets
$5.3M
Officer Compensation
→$0
Other Salaries
$862.1K
Investment Income
$225.3K
Fundraising
▼N/A
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $1.2M
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
University of CA San Diego94-3067788 | La Jolla, CA | $497.5K | Cash | — |
| Philadelphia, PA | $185.1K | Cash | — | |
Case Western Reserve University34-1018992 | Cleveland, OH | $110K | Cash | — |
Regents of the University of Michigan38-6006309 | Ann Arbor, MI | $110K | Cash | — |
Trustees of Boston University04-2103547 | Boston, MA | $110K | Cash | — |
University of Rochester16-0743209 | Rochester, NY | $84.9K | Cash | — |
University of IA42-6004813 | Iowa City, IA | $80.3K | Cash | — |
University of Pittsburgh25-0965591 | Pittsburgh, PA | $55K | Cash | — |
| Total | $1.2M | |||
University of CA San Diego
La Jolla, CA
$497.5K
Philadelphia, PA
$185.1K
Cleveland, OH
$110K
Ann Arbor, MI
$110K
Boston, MA
$110K
Rochester, NY
$84.9K
University of IA
Iowa City, IA
$80.3K
Pittsburgh, PA
$55K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
WarningTax-exempt status was revoked on May 15, 2010
Reinstated on May 15, 2010
Exemption type: 00
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $3.5M | $3.3M | $3M | $6M | $5.3M |
| 2023IRS e-File | $2.8M | $2.6M | $2.1M | $5M | $4.8M |
| 2022 | $1.8M | $1.8M | $2M | $4.2M | $4.2M |
| 2021 | $2.1M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
Revocation status: IRS Auto-Revocation List
| Total |
|---|
| Michael Golinkoff | President | 10 | $0 | $0 | $0 | $0 |
| Elizabeth Kramer | Secretary | 20 | $0 | $0 | $0 | $0 |
Michael Golinkoff
President
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Elizabeth Kramer
Secretary
$0
Hrs/Wk
20
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Beth Shapiro Lavin | Director | 2 | $0 | $0 | $0 | $0 |
| Coby Kramer Golinkoff | Director | 5 | $0 | $0 | $0 | $0 |
| Danielle Selber | Director | 0.5 | $0 | $0 | $0 | $0 |
| Doug Young | Director | 0.2 | $0 | $0 | $0 | $0 |
| Emily Kramer Golinkoff | Director | 10 | $0 | $0 | $0 | $0 |
| Greg Reh | Director |
Beth Shapiro Lavin
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Coby Kramer Golinkoff
Director
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Danielle Selber
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
| $2.1M |
| $943.9K |
| $4.4M |
| $4.3M |
| 2020 | $2M | $1.8M | $1.2M | $3.2M | $3.2M |
| 2019 | $2.1M | $1.8M | $1.1M | $2.3M | $2.3M |
| 2018 | $1.4M | $1.1M | $1.3M | $1.3M | $1.3M |
| 2017 | $1M | $756.4K | $895.6K | $1.1M | $1.1M |
| 2016 | $681.9K | $484.8K | $656.3K | $1M | $1M |
| 2015 | $775K | $831.7K | $143K | $978.5K | $978.5K |
| 2014 | $292.8K | $267.6K | $278.9K | $359.1K | $346.5K |
| 2013 | $205.2K | $205.2K | $30.6K | $228.4K | $228.4K |
| 2012 | $155.3K | — | $180.1K | $53.8K | — |
| 2011 | $80.4K | — | $1,840 | $78.5K | — |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990-EZ | Data |
| 2011 | 990-EZ | Data |
| 0.5 |
| $0 |
| $0 |
| $0 |
| $0 |
| Jessica Rutstein Lazarus | Director | 0.5 | $0 | $0 | $0 | $0 |
| Joan Denenberg | Director | 2 | $0 | $0 | $0 | $0 |
| Julie Wertheimer | Director | 0.2 | $0 | $0 | $0 | $0 |
| Nancy Astor Fox | Director | 0.2 | $0 | $0 | $0 | $0 |
| Nick Dinges | Director | 1 | $0 | $0 | $0 | $0 |
| Nickie Boston | Director | 1 | $0 | $0 | $0 | $0 |
Doug Young
Director
$0
Hrs/Wk
0.2
Compensation
$0
Related Orgs
$0
Other
$0
Emily Kramer Golinkoff
Director
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Greg Reh
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Jessica Rutstein Lazarus
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Joan Denenberg
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Julie Wertheimer
Director
$0
Hrs/Wk
0.2
Compensation
$0
Related Orgs
$0
Other
$0
Nancy Astor Fox
Director
$0
Hrs/Wk
0.2
Compensation
$0
Related Orgs
$0
Other
$0
Nick Dinges
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Nickie Boston
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0